Home Forums |
#51
|
|||
|
|||
Patti, my heart hurts for you and Dean. Your strength, love and fight have been inspirational! Thank you for sharing your journey with us all. Thinking and praying for you.
__________________
Sharnie, 37yo, dx Mar 2012 RAEB II 13% blasts. 8 months of Vidaza. Transformed to AML in Nov 2012, induction chemo, no remission. 2nd lot of chemo, remission achieved. SCT with 8/10 match, Mar 2013. |
#52
|
|||
|
|||
My thoughts and prayers are with you, Patti and Dean, Dru and Bob.
__________________
Dx MDS RAEB 10% blasts + hypogammaglobulinemia, Sep 2011. Jan 2012 BMB - blasts down to 2% w/out treatment so BMT cancelled. Re-diagnosis RCMD. Watch and wait from Feb 2012. IVIg 5-weekly. New diagnosis Oct 2019 AML 23% blasts in marrow, 10% blasts in peripheral blood. |
#53
|
|||
|
|||
Quote:
Patti, you have been there all the way for Dean, and as a group we are with you and with our arms wrapped around you both. Stay close and keep us up to date. Our Love, Prayers, Hugs, and Care, Dru and Bob MagicBob |
#54
|
|||
|
|||
Dear Patti,
How I wish I was closer to be there with you. As MagicBob said, we are all collectively with you although I know that's not the same as being physically there. I pray for you both every day and hope that this will soon be over for you and Dean. God love, bless, and comfort you as only He can. Sally |
#55
|
|||
|
|||
Dear Patti
I hope the hospice gives you some contacts for grief counselling and other help during this time. No one should be alone Patti. I hope you have a neighbour or friend who can be there with you and make sure you are ok. Some of us don't think straight when we are tired and emotional, you need support for all your going through. Thinking of you Honey
__________________
Dx June 2013 MDS del 5q and 7t. Further chromosone changes August 2017. Lenolidomide and 10 months on Azacytadine failed. Transition to AML August 2018 failed induction chemo. Trial drug FT2101 failed at 6 months. Next on Venetoclax with cytoterabine. |
#56
|
|||
|
|||
Dear Patti -
My heart aches for you- I wish there was something I could do for you or say that would make things better. Please believe that God is there watching over you and Dean -
__________________
MDS RAEB 2 w/excess blasts - 3+ Fibrosis - previous treatments ATG, Vidaza, Dacogen and Rituxan. Waiting to find my match - Susan |
#57
|
|||
|
|||
I wish I could just put my arms around you right now and give you comfort. You do need to take a little time for yourself hon. I know that is much easier said than done though. My thoughts and prayers are with you both.
Elaine |
#58
|
|||
|
|||
Patti,
I agree with all of the others. I so wish I could give you a hug. Know that you have tons of virtual hugs here. God Bless you my dear! Deb |
#59
|
|||
|
|||
Patti -
Here's a hug from us. I can only hope to have your grace in the months and years to come.
__________________
Liz, wife of Bob (64) dx 11/2012 RAEB II now 15% blasts rare t(1;3)(p36.3q21) Vidaza, Aranesp, Exjade |
#60
|
|||
|
|||
You fought your sixteen month battle against Myelodyspastic Syndrome (MDS) with courage, strength and dignity. Only those going through this fight will understand how difficult it was. No more needles, chemo, transfusions, doctor visits, hospitals. Like you said at your last transfusion "I don't have to do this anymore"! You were so brave!
Dean I. Darby Febuary 1, 1937 - September 30, 2013 I always knew the time would come when we would say 'goodbye'. It came so soon, my heart is sad, it seems like we just said 'Hi'. The times we shared now have a place, so special in my heart. The memories, the laughs and tears, all from the very start. I care so very much for you, the feelings just won't end. My love, my life, my husband, my dearest and best friend. They say it's a beautiful journey from the old world to the new Someday I'll make that journey which will lead me straight to you And when we reach that garden in which there is no pain I'll put my arms around you and we'll never part again If I listen really close when I am now alone at night I'll hear your voice comfort me and say that you are alright It isn't easy to understand why certain things must be And the reasons why they happen are so often hard to see But I will find comfort in the knowledge that God is always there To keep the one I loved so much forever in His care You gave me many things in life, gifts both great and small But most of all you gave me love and that's the greatest gift of all I Will Love You Forever, Patti
__________________
Dean,age 76, dx MDS, RAEB-2, 17% blasts, June 2012 - May 2013 - Dacogen with Neupogen and transfusions as needed. End of May 2013 Dacogen stopped working. BMB July 2013 shows RAEB-2 and severe Myelofibrosis. Passed away September 30, 2013 |
#61
|
|||
|
|||
Hello Patti,
Dean is now in peace. You are both an exemple of courage for this forum. You are right when you said that it's so difficult to say goodbye but Dean's mind is always with you. A lot of hugs and courage, take care of you. Friendly regards, béné
__________________
boyfriend with RARS-T dx 11/02//dx : hb 11,5; plt 870000, wh : 6500//Before fasting cure (13/04): hb: 8,9; plt 2200000; white:6000//After fasting cure (14/09): hb 12,5; platelets 400000, wh 3000.//Now (15/08) : hb : 11,plt : 650000, wh 3000// hydrea 1c/day and cardioaspirin, 1c/day,age: 56 y. |
#62
|
|||
|
|||
Dear Patti
I am sad to hear the news. My deepest sympathies to you Patti. May Dean finally find peace as well as yourself. Please take care of your self and get what ever help you need to get you through this time. What a beautiful poem and a lovely picture of Dean. Big hugs Honey
__________________
Dx June 2013 MDS del 5q and 7t. Further chromosone changes August 2017. Lenolidomide and 10 months on Azacytadine failed. Transition to AML August 2018 failed induction chemo. Trial drug FT2101 failed at 6 months. Next on Venetoclax with cytoterabine. |
#63
|
|||
|
|||
My Dear Patti,
As many have said - your grace, courage, and dignity has shown through all these difficult months. And all the while you have reached out to others with your unending concern and compassion. You and Dean have been an example to all. I am thankful that Dean is now at peace with his Heavenly Father. I know he will be looking over you in the days ahead. Take good care of yourself. You have been Dean's angel on earth. And Honey is right - what a beautiful, appropriate poem - and wonderful picture of Dean. So handsome... With love, prayers and (((hugs))) God Bless and comfort you, Sally |
#64
|
|||
|
|||
Patti,
What a beautiful tribute to your beloved Dean. It is so true that he is no longer suffering and is at peace. May God wrap his arms around you and comfort you now in your time of need. The strength and dignity you and Dean have shown is such a wonderful and inspirational example for all of us. Deb |
#65
|
|||
|
|||
Dear Patti,
Very sorry to hear this news.Dean fought a hard and courageous battle. May you find peace ,comfort and strength to bear this loss.Take care of yourself and as Honey has suggested please get help in this difficult time. -RP
__________________
RP, Daughter of SK age 66, diagnosed MDS July 2012 |
#66
|
|||
|
|||
Dean was a hero to all of us. Patti, you are still a hero to all of us. You've shown us how far love and inner strength can carry you. I hope you continue to feel Dean's presence and the love he gave you back every day. You have my sympathies for a loss that can't be measured.
|
#67
|
|||
|
|||
Patti,
I'm so sorry to hear about Dean. Lovely poem and photo, thanks for posting. Deb |
#68
|
|||
|
|||
Patti, my heart aches for you. May you find some peace in good memories of your time together. Karen
__________________
Karen, age 62, dx MDS RAEB-2 1/8/10: pancytopenia WBC 2.7k/Hgb 7.4/Hct 22.1/Plt 19k; complex cytogenetics -3,del(5)(q14q33),-6,+8,+mar,17% blasts. MUD BMT Johns Hopkins 11/30/10. Dx tongue cancer 8/31/12. ok now. blog mausmarrow.com |
#69
|
|||
|
|||
Patti,
Words are so inadequate at a time like this. My heart is so heavy and I wish I were closer to try and help comfort you. Please know you will be in my thoughts and prayers and I know Dean would want you to know that you were a wonderful wife, friend and caregiver. God bless you and please stay in touch.
__________________
Linda, Al's wife, 75; dx MDS 5/2010; Vidaza 6/2010; ARRY614 & Sapacitabine clinical trials at Emory, no results, stopped 12/2011. Had BMB at NIH on 6/5/12, blasts 10-15% so he's not eligible for trial there. :eek Promacta trial, Tampa, blasts 25-30% 8/17/12 AML, trying Dacogen now and praying. |
#70
|
|||
|
|||
Patti,
I'm so very sorry for your loss, my sympathies are with you and your loved ones. I hope in time you'll come back to visit us here, if it isn't too painful for you. I have to go reread my book, The Fall of Freddie the Leaf. It was given to me when my mom died, and I have read it probably a hundred times. It's one of those books that has layers and layers of meanings, and even though I cry when I read it, it gives me a good feeling inside at the same time.
__________________
Edith, mom to Eric, dx 2/11 at age 15 with SAA, began ATG/CsA 3/11, switched to Tacrolimis 8/11, off all meds 9/11 and is now considered to have bone marrow failure not otherwise specified. |
#71
|
|||
|
|||
Dear Patti,
I am so sorry for your loss. Your poem is beautiful and the photo of Dean is lovely. My thoughts and prayers are with you. Rachael
__________________
Diagnosed MDS Del 5q October 2007, blood transfusions 2010, commenced Revlimid 2010. Transfusion independent. |
#72
|
|||
|
|||
Dear Patti
Tonight is the Light the Night event here in Perth. I will carry a lantern for Dean for you, as well as my own on the walk. Honey
__________________
Dx June 2013 MDS del 5q and 7t. Further chromosone changes August 2017. Lenolidomide and 10 months on Azacytadine failed. Transition to AML August 2018 failed induction chemo. Trial drug FT2101 failed at 6 months. Next on Venetoclax with cytoterabine. |
#73
|
|||
|
|||
Quote:
Patti, we had been dreading this news and still don't have the words to help ease your pain. Dru and I offer our sympathy, our love and prayers. Also here is our email, we would love to communicate with you personally from time to time: drubob63@verizon.net Dru and Bob MagicBob |
#74
|
|||
|
|||
Patti my thoughts and prayers are with you during this very rough time. I am so sorry to hear about Dean. Today he is completely healed! I hope you have some good friends around you. Much love and peace hon.
Elaine |
#75
|
|||
|
|||
Thank you
It is very early in the morning, and I am unable to sleep.
I do wish I could thank each of you in person for your kind and supportive words, your expressions of sympathy, and your thoughts and prayers during this difficult time for me. I cannot find the words to express my feelings for your love and support. Each of you are helping me get through this and giving me great comfort. I hope you know how much it means to me. As always, sending my love, hugs, faith, hope, prayers and a little laughter each day. Patti Also, yesterday I found out that my cousin's husband has just been diagnosed with MDS. It doesn't seem possible.
__________________
Dean,age 76, dx MDS, RAEB-2, 17% blasts, June 2012 - May 2013 - Dacogen with Neupogen and transfusions as needed. End of May 2013 Dacogen stopped working. BMB July 2013 shows RAEB-2 and severe Myelofibrosis. Passed away September 30, 2013 |
Thread Tools | Search this Thread |
|
|
Similar Threads | ||||
Thread | Thread Starter | Forum | Replies | Last Post |
Lytoxan chemotherapy treatment desperately sought | RyanD | Drugs and Drug Treatments | 4 | Thu Aug 14, 2008 12:08 AM |
New Treatment Center Information | Marrowforums | Site Announcements | 0 | Sun Feb 17, 2008 04:53 PM |
Guide to the Treatment Center Map | Marrowforums | Site Announcements | 0 | Tue Jan 1, 2008 11:22 PM |
Interactive Treatment Center Map | Marrowforums | Site Announcements | 0 | Tue Jan 1, 2008 11:22 PM |