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  #101  
Old Fri Mar 5, 2010, 06:40 AM
Birgitta-A Birgitta-A is offline
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Vera
Dear Heather,
Thank you very much for keeping us informed about Vera - we all hope she will recover soon. I understand that you have had a hard time with GVHD and it is good to hear from you again.
Kind regards
Birgitta-A
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  #102  
Old Fri Mar 5, 2010, 10:21 PM
Laura Laura is offline
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Oh this is such upsetting news. Please keep us updated on Vera and how she is doing. I wish her all the best. It goes to show no matter how far out you are from transplant you can still have a hell of a time of it.

Laura
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Laura; dx SAA; MUD transplant June 18, 09; ITP June, 2011; fighting multiple complications/GVHD and now low counts again...
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  #103  
Old Sat Mar 6, 2010, 07:59 AM
squirrellypoo squirrellypoo is offline
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If anyone can fight this, Vera can! I believe in you, girl!
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36/F - 1984 SAA treated with ATG [complete remission until] Oct 08 - burst blood vessels in eyes and low platelets; Jan 09 - AA & hypo-MDS; July 09 - BMT (RIC MUD PSCT) July 10 - 10k for Anthony Nolan (1yr post BMT! 53:48) Sep 10 - Wedding! I've run 5 marathons now!! (PB 3:30!)
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  #104  
Old Wed Mar 10, 2010, 06:52 PM
launch launch is offline
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Update on Vera....
I emailed a "Group" of Vera's Friends, and the lastest update I received was from an email dated yesterday (3/09/10).

".....Vera is off the ventilator (yeah! – it was a source of agitation and very uncomfortable for her). The Doctors do not know what caused the lung problem. Vera is still in ICU. Dennis does not know when she will be returning home. The bottom line is that she is doing much better, but still has a lot of healing to do before she returns home..."

Just wanted to update all of Vera's Friends & Prayer Warriors so we can help "Lift Her" to a speedy recovery.....

Cindy
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  #105  
Old Thu Mar 11, 2010, 06:03 AM
Laura Laura is offline
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Thank God!!! Go Vera!!!!!!!!!!!!!!!!!!!
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Laura; dx SAA; MUD transplant June 18, 09; ITP June, 2011; fighting multiple complications/GVHD and now low counts again...
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  #106  
Old Thu Mar 11, 2010, 09:55 PM
Zoe's Life Zoe's Life is offline
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Yeah!!! I am glad for the good news.

Zoe
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Diagnosed MDS-RA 5q- at age 47 (November 2006). Aranesp 2/07, good response.
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  #107  
Old Thu Mar 11, 2010, 10:47 PM
launch launch is offline
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Then, I got an email from Vera's husband, Dennis, today, who said Vera was still on the ventilator, but, resting comfortably..... confusing right now.... all I can say is... Keep Vera and her family in her prayers .... she needs her prayers warriors right now!!!!

Cindy
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Cindy, wife of Ron 66 dx w/MDS(RARS)Feb'09,Vidaza 13mons. BMB 2/10 -5q/increased blasts. Watch/wait May-Jul10. Revlimid Jul-Aug10:A-Fib. BMB Aug18, 12%blasts. MDS to AML. Induction completed 9/21/10. BMB Oct10:CR. Consolidaton:10/25/10. Dacogen Dec27-29. SCT on Hold. Fevers/Nt sweats Jan11.
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  #108  
Old Sat Mar 13, 2010, 04:46 AM
Laura Laura is offline
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Thanks for the update. Please keep us posted. Laura
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Laura; dx SAA; MUD transplant June 18, 09; ITP June, 2011; fighting multiple complications/GVHD and now low counts again...
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  #109  
Old Mon Mar 15, 2010, 04:14 PM
Neil Cuadra Neil Cuadra is offline
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Yesterday's update from Dennis:
Vera is still in ICU. She is resting and on a ventilator via a trach tube to assist her breathing. This is a waiting game at this point. A few days ago she was able to respond to questions. Seems she is improving.
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  #110  
Old Mon Mar 15, 2010, 04:18 PM
Laura Laura is offline
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Neil did she get GVHD in the lungs or an infection? What caused this to occur?

Laura
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Laura; dx SAA; MUD transplant June 18, 09; ITP June, 2011; fighting multiple complications/GVHD and now low counts again...
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  #111  
Old Mon Mar 15, 2010, 05:00 PM
Neil Cuadra Neil Cuadra is offline
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Quote:
Originally Posted by Laura View Post
Neil did she get GVHD in the lungs or an infection? What caused this to occur?

Laura
We didn't hear the details. I have assumed it was an opportunistic lung infection.

We'll continue to listen for news and root for Vera's full recovery.
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  #112  
Old Mon Mar 15, 2010, 05:33 PM
Laura Laura is offline
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Okay thanks, please keep us posted.
Laura
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Laura; dx SAA; MUD transplant June 18, 09; ITP June, 2011; fighting multiple complications/GVHD and now low counts again...
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  #113  
Old Mon Mar 15, 2010, 11:15 PM
Beryl Beryl is offline
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praying
Quote:
Originally Posted by Neil Cuadra View Post
Yesterday's update from Dennis:
Vera is still in ICU. She is resting and on a ventilator via a trach tube to assist her breathing. This is a waiting game at this point. A few days ago she was able to respond to questions. Seems she is improving.
Hey Vera,
You're in my prayers.
Beryl
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  #114  
Old Tue Mar 16, 2010, 08:28 AM
squirrellypoo squirrellypoo is offline
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Thanks for the updates. I'm thinking about you loads, Vera!
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36/F - 1984 SAA treated with ATG [complete remission until] Oct 08 - burst blood vessels in eyes and low platelets; Jan 09 - AA & hypo-MDS; July 09 - BMT (RIC MUD PSCT) July 10 - 10k for Anthony Nolan (1yr post BMT! 53:48) Sep 10 - Wedding! I've run 5 marathons now!! (PB 3:30!)
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  #115  
Old Tue Mar 16, 2010, 11:05 AM
tserdogan tserdogan is offline
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i believe everything is changing to normal way.Come on Vera.
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  #116  
Old Tue Mar 16, 2010, 02:44 PM
Jill2008 Jill2008 is offline
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Your in my thoughts and prayers Vera!
Jill
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Jill, 58 y/o female dx with MDS-U June 2008, IPSS:Int. 2. Allogeneic SCT May 25, 2010. Relapsed January 2011. Started Vidaza (azacitadine) Feb. 2011; Currently on cycle #58 , IV, 5-days every six weeks. WBC 5.3, Hgb 13.0, PLT 110 (2/16/18)
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  #117  
Old Tue Mar 16, 2010, 10:15 PM
flowerlady flowerlady is offline
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Vera,

Keep the faith...you have so many people that love you and are sending you their support. We are tough, we are fighters, rest and let your body heal. Looking forward to hearing from you again very soon!. We have plans to make! Sending you and Dennis huge hugs.
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Flowerlady, 49, Diagnosed MDS 5q- 06/07, Revlimid 07/07 - 11/08. Vidaza 12/08 - 3/09. Allogeneic Stem Cell Transplant 4/14/09.
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  #118  
Old Fri Mar 19, 2010, 04:21 PM
Neil Cuadra Neil Cuadra is offline
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From Dennis:
Vera has been in ICU at UCSF for 21 days with a lung infection. We had a meeting with the doctors yesterday and they do not think that she will get better. I will try to keep you all posted as I am able. Vera's nephew and brother are with me. Pray for her.
We hope the doctors are wrong. As patients andcaregivers we know how hard this must be for Vera's family and we hope they can take strength from each other and from their many friends, including Vera's online friends.
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  #119  
Old Fri Mar 19, 2010, 06:02 PM
squirrellypoo squirrellypoo is offline
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I don't think the fight is up yet, Vera can be a tough cookie when she wants to be.... We're all behind you, Vera.
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36/F - 1984 SAA treated with ATG [complete remission until] Oct 08 - burst blood vessels in eyes and low platelets; Jan 09 - AA & hypo-MDS; July 09 - BMT (RIC MUD PSCT) July 10 - 10k for Anthony Nolan (1yr post BMT! 53:48) Sep 10 - Wedding! I've run 5 marathons now!! (PB 3:30!)
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  #120  
Old Sun Mar 21, 2010, 11:55 AM
PH Steele PH Steele is offline
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Vera's Condition
Yes, this upsets me very much. Everything seemed to be going so well for Vera just such a short time ago. I do not understand how things could change so quickly. Vera is in my prayers and her family as they support her through this time. Anyone who has information please post.
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  #121  
Old Sun Mar 21, 2010, 11:57 AM
PH Steele PH Steele is offline
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To Flowerlady
Quote:
Originally Posted by flowerlady View Post
Vera,

Keep the faith...you have so many people that love you and are sending you their support. We are tough, we are fighters, rest and let your body heal. Looking forward to hearing from you again very soon!. We have plans to make! Sending you and Dennis huge hugs.
Flowerlady, I have followed you through Vera. I hope that you are better and stronger. I know you have had a tough time.
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  #122  
Old Tue Mar 23, 2010, 11:35 PM
PH Steele PH Steele is offline
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Sad News
Quote:
It is with much sadness that I have to tell you that our Beautiful Vera passed away today at 5:00 p.m. Dennis, Walter, Aaron and Chris were by her side when she opened her eyes to say "Good-bye" to them. She was not in any pain and suffers no more. She will be missed very much by all of us. My heart is filled with sadness because I'll miss her very much....... My love will be with her forever!

Dennis will be sending out another email to let all of you know when the celebration of her life will be. She will be cremated with a service and celebration to follow.

love to all - Vera's cousin, georgie
I received this e-mail today. It makes my heart very heavy.
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  #123  
Old Wed Mar 24, 2010, 12:10 AM
launch launch is offline
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Vera.....
I received this same email this evening... and it broke my heart... Vera was doing so well... and she was "Hope" to so many people.... My prayers go out to her husband, Dennis and their family.... They've all been through so much.

"Deeply Saddened..."
Cindy
__________________
Cindy, wife of Ron 66 dx w/MDS(RARS)Feb'09,Vidaza 13mons. BMB 2/10 -5q/increased blasts. Watch/wait May-Jul10. Revlimid Jul-Aug10:A-Fib. BMB Aug18, 12%blasts. MDS to AML. Induction completed 9/21/10. BMB Oct10:CR. Consolidaton:10/25/10. Dacogen Dec27-29. SCT on Hold. Fevers/Nt sweats Jan11.
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  #124  
Old Wed Mar 24, 2010, 06:24 AM
Birgitta-A Birgitta-A is offline
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Vera
I was deeply saddened when I learned about Vera's passing. She was a source of inspiration to all of us.
Kind regards
Birgitta-A
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  #125  
Old Wed Mar 24, 2010, 10:44 AM
squirrellypoo squirrellypoo is offline
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I am so, so sorry to hear of her passing. Vera was such a source of hope and support for so many people here, and she's been so strong in fighting everything that life and this disease has thrown at her. I hope now that she has finally achieved the peace that has eluded her for so long.

Goodbye, Vera. You will be sorely missed.
__________________
36/F - 1984 SAA treated with ATG [complete remission until] Oct 08 - burst blood vessels in eyes and low platelets; Jan 09 - AA & hypo-MDS; July 09 - BMT (RIC MUD PSCT) July 10 - 10k for Anthony Nolan (1yr post BMT! 53:48) Sep 10 - Wedding! I've run 5 marathons now!! (PB 3:30!)
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