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AA Aplastic anemia

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Old Thu Jan 4, 2018, 06:42 AM
whackerswalsh whackerswalsh is offline
Join Date: Nov 2017
Location: Dublin, Republic of Ireland
Posts: 8
Using Neorecorman drug

Hi All,

Firstly good wishes in 2018 to everyone.

Does anyone currently with SAA been prescribed or is using Neo-recormon 30000 or in short EPO drug injections?

My husband has been taking these weekly injections for the past 6 months and want to know what is the length of time you can continue to use, and if it has made any improvement to the quality of day to day living.

On the surface it looks like it makes a difference by increasing more red blood cells but I would like to know if anyone out there has had any experience of it.

Thanks alot!

Barbara wife of Patrick age 60, Diagnosed SAA Jan 2016, 2 Treatments of ATG partial response, continuing with Cyclosporine.
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