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Old Tue Jun 5, 2018, 07:22 PM
Eva's daughter Eva's daughter is offline
Join Date: Oct 2016
Location: Perth, Australia
Posts: 23
Anyone have any encouraging news after a relapse?

Hi all,

Mum had her SCT just under a year ago. Whilst the last few months have been terrific, she has been having a relapse and as of 4 weeks ago, her bloods have been dropping dramatically.
Just wondering if anyone has any success after relapse?

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Old Tue Jun 5, 2018, 10:19 PM
JoMac53 JoMac53 is offline
Join Date: Sep 2017
Posts: 75
I don't have any experience to share with you but I'm sorry your mom is relapsing.
Joanne, 65F, 8/17 dx Primary MDS-EB1, Pancytopenia; 6/19 MPN w/CMML characteristics, dr calling it AML even w/blasts <20%; 7/19 Induction w/Vyxeos resulting in complete remission with incomplete blood count recovery.
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Old Tue Jun 5, 2018, 11:26 PM
Meri T. Meri T. is offline
Join Date: Aug 2016
Location: Tokyo, Japan
Posts: 148
Yes, I have two wonderful friends who both relapsed after about a year. Before the relapse, their first transplant was going so well, just like your Mother's. They had no GVHD.

After the relapse, they both did a second transplant (cord blood), and a year later both are healthy, one is even back working as a chef!
Hope this helps.
Female 54, diagnosed MDS RAEB1 in August 2016, watch and wait for 9 months. Sibling match - Stem cell transplant in June 2017. Some GVHD skin.
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