Home         Forums  

Go Back   Marrowforums > Regional Discussions > Australia
Register FAQ Search Today's Posts Mark Forums Read

Australia News and discussions specific to Australia and Australians

Thread Tools Search this Thread
Old Sun Aug 5, 2007, 07:36 PM
jancye jancye is offline
Join Date: Jul 2007
Posts: 2
Hi from Australia

Hi everyone . I am new to the site and think its wonderful! Wish I had known about it a few years ago... I am Mum to Colleen who was diagnosed with AA in 2003 aged 18. We live in the Capital Canberra and Colleen was the only case dianosed for that year. It is really difficult finding anyone else in Australia with AA particulary as a parent.

You see Colleen also has Aspergers and a mild intelletual disability so wow was it challenging explaining her condition to her and then coping with a hospital environment!! Colleen has been off all meds now for 2 years and her counts are wonderful HB 135 Platlets 200 WBC 3.9 and she has 3 monthly bloods and hospital visits. Colleen dose not think about the future and I think that was what got her through. She just lives day by day...

We are really lucky with treatment in Australia as everytning is covered by our public health system and we have never paid anything for any of the treatments of long hopstital visits. On the other hand feel rather isolated here and can not get to the Conferences and support groups I hear that you have in the States.

I would be really interested if any one else out there is supporting a child with a disability as well as its a bit like a double whammy!!
Jancye,mother of colleen age 22;diagnosed AA 2003treated with ATG & cyclosporine. Been in remission since 2005.
Reply With Quote

Thread Tools Search this Thread
Search this Thread:

Advanced Search

Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

vB code is On
Smilies are On
[IMG] code is On
HTML code is Off
Forum Jump

Similar Threads
Thread Thread Starter Forum Replies Last Post
Is Soliris (eculizumab) covered by the PBS in Australia? TASHMAC Australia 4 Sat Aug 20, 2016 05:11 PM
Does Canada or Australia allow post BMT patient(more than 2 years) as a immigrant dhruba_bd AA 4 Thu Aug 22, 2013 12:45 AM
Vidaza in Australia Birgitta-A Australia 0 Fri Dec 10, 2010 04:43 AM
About the Australia Regional Forum Marrowforums Australia 2 Mon Oct 25, 2010 03:15 AM
Regional Forum for Australia Marrowforums Site Announcements 0 Sun Jul 11, 2010 12:07 AM

All times are GMT -4. The time now is 10:38 AM.

Powered by vBulletin® Version 3.6.7
Copyright ©2000 - 2020, Jelsoft Enterprises Ltd.
Forum sites may contain non-authoritative and unverified information.
Medical decisions should be made in consultation with qualified medical professionals.
Site contents exclusive of member posts Copyright 2006-2020 Marrowforums.org