Home         Forums  

Go Back   Marrowforums > Practical Issues > Insurance, Finances, Disability, Veterans Benefits
Register FAQ Search Today's Posts Mark Forums Read

Insurance, Finances, Disability, Veterans Benefits Your finances, insurance, job issues, and veterans benefits

Thread Tools Search this Thread
Old Thu Mar 7, 2013, 08:59 PM
Lori Patrick Lori Patrick is offline
Join Date: Oct 2010
Location: Indianapolis, Indiana
Posts: 166
Anyone Had Disability Stop?

Hey everone. I am jumping the anticipatory gun here. Has anyone had their disability removed? My husband is retiring in 2 years and will have to purchase health insurance. I will go on Medicare (so long as I am disabled). My daughter who at age 27 was diagnosed with metastatic breast cancer and receives herceptin every 3 weeks along with tamoxefen pills daily. The Social Security Admin sent her to their doctor and they say she is MILD - which infers that she can work. She is sickly for a week after her herceptin. Her doctor wrote a letter insisting that she really cannot work with reliability due to the treatments and the appointments to check for recurrence of the disease. She had an attorney go with her to meet with SS and they pulled her file for a hearing. Last we heard they do not know if a hearing will be necessary. So we wait.

I am now paranoid that they will do this to me. I have graft v. host which requires me to be on 3 anti immune suppressants, thus I have a low, low immune system. I can do some things, but if I go for a day, I generally need 2 days to recouperate. I wondered if anyone had experienced this with Social Security. Thanks! Lori
Lori, female age 53 dx MDS-RAEB-II 15% blasts 10-2010. Induc Chemo 10/14/10 for 7 days - results unacceptable so 5 additional days chemo. Complete Remission 12/10/10!! SCT 1-11-11 remission achieved!!! BMB 1-29-11 100% Donor! cgvh eyes,skin (Caringbridge.org/visit/loripatrick)
Reply With Quote
Old Thu Mar 14, 2013, 08:07 AM
Marlene Marlene is offline
Join Date: Oct 2006
Location: Springfield, VA
Posts: 1,348
Hi Lori,

We don't have any experience with Social Security. I know others have used attorneys who specialize in ss disability if they get denied or run into trouble. Hope you don't have to go that route. Unfortunately, the people who abuse these programs make it difficult for those who really need it.

Hope your daughter's case goes well.

Marlene, wife to John DX w/SAA April 2002, Stable partial remission; Treated with High Dose Cytoxan, Johns Hopkins, June 2002. Final phlebotomy 11/2016. As of January 2017, FE is 233, HGB 11.7, WBC 5.1/ANC 4.0, Plts 146K.
Reply With Quote

Thread Tools Search this Thread
Search this Thread:

Advanced Search

Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

vB code is On
Smilies are On
[IMG] code is On
HTML code is Off
Forum Jump

Similar Threads
Thread Thread Starter Forum Replies Last Post
MDS/AML va disability question Piff MDS 5 Thu May 28, 2015 11:06 PM
Applying for Social Security Disability When You Have MDS Marrowforums Insurance, Finances, Disability, Veterans Benefits 0 Wed Nov 26, 2014 12:17 AM
Social Security Disability with mds gbrilla Insurance, Finances, Disability, Veterans Benefits 13 Mon Jan 2, 2012 09:54 PM
When to stop Vidaza? Paolo D. Drugs and Drug Treatments 5 Sun Jun 26, 2011 02:15 AM
when to decide to go on disability? Robi1Knobi Insurance, Finances, Disability, Veterans Benefits 10 Thu Dec 30, 2010 06:34 PM

All times are GMT -4. The time now is 01:15 PM.

Powered by vBulletin® Version 3.6.7
Copyright ©2000 - 2020, Jelsoft Enterprises Ltd.
Forum sites may contain non-authoritative and unverified information.
Medical decisions should be made in consultation with qualified medical professionals.
Site contents exclusive of member posts Copyright 2006-2020 Marrowforums.org