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MDS Myelodysplastic syndromes

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  #1  
Old Thu Feb 6, 2014, 07:39 PM
Alvin Alvin is offline
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cannabidiol

Has anyone heard of cannabidiol used as a treatment for MDS?
I have been reading a lot of interesting stuff about this cannabis product
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  #2  
Old Thu Feb 6, 2014, 08:56 PM
bailie bailie is offline
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You are kidding, right?
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age 70, dx RAEB-2 on 11-26-2013 w/11% blasts. 8 cycles Vidaza 3w/Revlimid. SCT 8/15/2014, relapsed@Day+210 (AML). Now(SCT-Day+1005). Prepping w/ 10 days Dacogen for DLI on 6/9/2017.
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  #3  
Old Thu Feb 6, 2014, 09:06 PM
triumphe64 triumphe64 is offline
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Alvin,

That is your first post.
Are you a grower? User? How do you get it across the border.
That being said, I see you can buy it from Amazon.
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Dallas, Texas - Age 76 - Pure Red Cell Aplasia began March 2005 - Tried IVIG - Then cyclosporine and prednisone. Then Danazol, was added. Then only Danazol . HG reached 16.3 March 2015. Taken off all meds. Facebook PRCA group https://www.facebook.com/groups/PureRedCellAplasia/

Last edited by triumphe64 : Fri Feb 7, 2014 at 12:53 PM. Reason: spelling.
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  #4  
Old Fri Feb 7, 2014, 11:23 AM
Alvin Alvin is offline
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I have never tried the stuff. Wouldn't even know where to get it.
Google Dr, Sanjay Gupta and cannabidiol
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  #5  
Old Fri Feb 7, 2014, 11:53 AM
KMac KMac is offline
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While I didn't find anything about treating MDS with cannabidiol, there do seem to be some promising studies on it's use to treat other ailments (one link below from the Mayo Clinic):

http://www.mayoclinic.org/drugs-supp...1&DSECTION=all

http://en.wikipedia.org/wiki/Cannabidiol

Unlike THC, it appears from the links above that Canabidiol is not an intoxicating component of marijuana.

More pertinent to our forum, here's an ongoing study out of Israel with promising results treating post-transplant GvHD with cannabidiol:

http://www.mor-research.com/project/...tment-of-gvhd/

Considering 'getting it across the border', it looks like Alvin is up in BC, Canada, so his border is with Washington state, where marijuana is now legal even for recreational use. I understand in BC marijuana use is essentially decriminalized. So it probably can be obtained pretty easily on either side of that particular border.
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Kevin, male age 45; dx SAA 02/2012 - Hgb 5.8, platelets 14, ANC 200, 1% cellularity. Received ATG 03/2012. As of 03/2015, significant improvement - Hgb 15, platelets 158, ANC fluctuates around 1000, Lymphocytes 620. Tapering cyclosporine. BMB 20-30% cellularity.
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  #6  
Old Sat Feb 8, 2014, 09:27 PM
curlygirl curlygirl is offline
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I haven't heard of it's use in MDS. I guess scientists go on either side of it actually helps with other cancers, or it is a placebo effect that relaxes you and the relaxing helps. I'm sure a lot of natural products help with things. We were told not to feed my son garlic or give him vitamin C while he's on cyclosporine because cyclosporine is an immune suppressant and garlic & vitamin C boosts your immunity (we were giving him vitamin C to help heal his bruises from having 6k platelets prior to ATG. It actually did help. He healed up a whole lot faster). I've also read studies where vitamin C and zinc supplementation affect cyclosporine absorption (you absorb less of it). You're not supposed to take grapefruit juice with cyclosporine either, just like with many other pharmaceuticals. So perhaps cannabidiol helps, or doesn't help, but until a study is done I suppose no one will know.
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  #7  
Old Sun Feb 9, 2014, 02:03 PM
sbk007 sbk007 is offline
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There's some guy in Canada that claims to have cured people with hash oil which is the concentrated extract of the plant. Many people read about it so its not uncommon to see a poster on here asking about it. Just yesterday there was an article about real estate in Colorado and the number of people wanting to live in communities that sell the stuff for medical reasons. As far as research goes its hard because its illegal so not easy to obtain. From what I read the research being done is its use as anti-nausea. I don't see anyone doing a study on its ability to cure diseases.
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  #8  
Old Wed Feb 19, 2014, 10:05 PM
Alvin Alvin is offline
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cannabidiol

Just so everyone knows Cannabidiol is non hallucinogenic
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  #9  
Old Thu Feb 20, 2014, 01:45 AM
Heather8773 Heather8773 is offline
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We were told in research hospitals it was being used and for transplant (I'm sure other treatment as well) it helped w pain, loss of appetite and mood [go figure] if my husband wanted he could request it. He never did though. I feel like we're old souls but still pretty conservative for our age
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Heather, wife of Ronald 36; dx PNH 2012; Dx VSAA 2013; eculizumab(Solaris) hATG 2/20/13 cyclosporine 400 mg daily. 37 units RBC and 15 units of platelets. Post BMT -pentam,vorconizole,valtrex, valcyte, actigall, Pepcid , prograf, magnesium.
10/10 MUD 10/10/13
Now no PNH or AA. Mixed Chimerisim
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