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Old Sat Oct 18, 2014, 04:54 PM
jillo1 jillo1 is offline
Join Date: Oct 2014
Location: auburn, il united states
Posts: 2
Anyone with AA in Illinois (near Springfield?)

Trying to connect with someone local with experience with AA
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Old Sat Oct 18, 2014, 06:16 PM
triumphe64 triumphe64 is offline
Join Date: Feb 2008
Location: Dallas, Texas
Posts: 441
Check out www.AAMDS.org for Communities of Hope.

Call the Patient Educator. She can help you find others similar to you. She also has loads of information.
Dallas, Texas - Age 77 - Pure Red Cell Aplasia began March 2005 - Tried IVIG - Then cyclosporine and prednisone. Then Danazol, was added. Then only Danazol . HG reached 16.3 March 2015. Taken off all meds. Facebook PRCA group https://www.facebook.com/groups/PureRedCellAplasia/
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Old Sun Oct 19, 2014, 01:56 PM
Neil Cuadra Neil Cuadra is offline
Join Date: Jul 2006
Location: Los Angeles, California
Posts: 2,500
There's a list of Support Groups and Communities of Hope at Marrowforums too, but I don't see one near Springfield or the neighboring cities.

You could ask Barnes Hospital if they know of support group among patients being treated there.

The Community of Hope in Chicago is focused on MDS.
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Old Sun Oct 19, 2014, 09:08 PM
sstewart09 sstewart09 is offline
Join Date: Feb 2013
Posts: 64
In Illinois, but near Chicago...

You might want to check out some of the Facebook groups for AA.
Samantha, wife of Joe age 34; diagnosed vsaa 2012; MUD BMT February 2013
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