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Old Thu Oct 22, 2015, 11:07 AM
carrieridge carrieridge is offline
Join Date: Jul 2014
Location: Bellflower, Ca
Posts: 30
RCMD to RAEB-1 - and a CT question

Is that the normal progression of MDS? I noticed my hubbys biopsy report of a year ago showed diagnosis of RCMD, the biopsy report now says RAEB-1. Is that how MDS progresses? His cytogenetics says 47,XY,+8(20), so all his cells show trisomy 8.

Does anyone on the board get CT scans? Would MDS show up on scans as far as how the bones look? While restaging his lymphoma it says "interval development of diffuse heterogeneus appearance of the thoracic osseous structures with multiple lucent foci that is most pronounced in the thoracic spine. Findings are nonspecific buy may represent lymphomatous involvement".

Both his oncologists (his lymphoma one and his MDS one) say that when you have bone marrow disease it can show like that on a ct scan, but they want an MRI to make sure it's not lymphoma. My hubby is refusing the MRI at this point.

So my question is about anyone's experiences with ct scans and MDS? anyone?
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Old Thu Oct 22, 2015, 11:14 AM
bailie bailie is offline
Join Date: Dec 2013
Location: McMinnville,OR
Posts: 825
I have had CT scans. I would doubt that MDS would show anything on a CT scan. MDS can progress in many directions.
age 70, dx RAEB-2 on 11-26-2013 w/11% blasts. 8 cycles Vidaza 3w/Revlimid. SCT 8/15/2014, relapsed@Day+210 (AML). Now(SCT-Day+1005). Prepping w/ 10 days Dacogen for DLI on 6/9/2017.

Last edited by bailie : Thu Oct 22, 2015 at 12:59 PM.
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Old Thu Oct 22, 2015, 11:27 AM
Data Data is offline
Join Date: Sep 2014
Location: Florida
Posts: 245
Trisomy 8 Article

Here is the URL to an article on trisomy 8.


Good luck

Prostate Cancer: Treated in early 2013 with HDR Brachytherapy. MDS-RCMD: Oct 2014. Biopsies: 46,XY,t(7;18)[2]: 46,XY,del(7)( q22)[3]: 45,XY,-7[6]: 45,XY,-7[10]: 45,XY,-7[13]. HSCT in April 2016.
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Old Fri Oct 23, 2015, 05:49 AM
Cheryl C Cheryl C is offline
Join Date: Dec 2011
Location: Lake Macquarie, Australia
Posts: 838
CT scans are a type of X-ray. MRI's use magnetic fields and don't involve radiation. It depends on what is being looked for as to which one is more suitable. See http://hanfordsentinel.com/news/loca...9bb2963f4.html for more detailed information.

I have had both and I didn't find it frightening.
Dx MDS RAEB 10% blasts + hypogammaglobulinemia, Sep 2011. Jan 2012 BMB - blasts down to 2% w/out treatment so BMT cancelled. Re-diagnosis RCMD. Watch and wait from Feb 2012. IVIg 5-weekly. New diagnosis Oct 2019 AML 23% blasts in marrow, 10% blasts in peripheral blood.
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Old Fri Oct 23, 2015, 09:45 PM
traceyn11 traceyn11 is offline
Join Date: Apr 2015
Location: Irvine, CA
Posts: 142
I have had both too just like Cheryl, but for me they were looking at my colon and lungs - but for infections, not MDS. The MRI was easier because there was no drinking the yucky contrast beforehand, but it does take longer and might be disconcerting if he is claustrophobic.
Tracey, mom & wife,age 58, dx MDS RAEB-2 4/15, normal cytogenetics, Update: SCT cancelled. Blasts at 67%. New dx AML.
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