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MDS Myelodysplastic syndromes

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  #1  
Old Mon Jun 30, 2008, 04:51 PM
Suzanne Suzanne is offline
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Location: Long Island, NY
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Question

We went to mom's hemotologist today to get results on her BMB. He didn't have all the information in as of yet, was waiting on genetics. At anyrate, her blasts were 5% 3 months ago when she had a BMB and they are now at 8%. If I am correct that would now make her RA, RAEB? My question is once the blasts go up is there anyway to get them back down or is she on the road to something worse? Her hemotologist is sending her to someone else for his opinion on Thursday. I also have an appointment for her to see a MDS doctor of excellent on July 25.
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Mom 69 diagnosed with MDS RA 3/08
TLK-199 started 7/17/08 - no response
Vidaza started 12/15/08 - no response
Dacogen started 01/10 - no response
Bone Marrow Biopsy 10/10 - 13% blasts
Bone Marrow Biopsy 12/22/10 - 45% blasts - AML
I have an angel 1/4/11
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Old Mon Jun 30, 2008, 09:59 PM
Steve Kessler Steve Kessler is offline
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Join Date: Aug 2006
Location: Bellevue, WA
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Yes, the excess blasts can be reduced!

There are several meds available. Mine went from 11% to 3% recently on Vidaza with Enbrel (a trial). Many others have long periods of success or even remission.
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Steve Kessler,Age 71, Dx 3/2001, Currently AML converted from MDS, 5q-, 11q23, Negative response to Aranesp, Revlimid. Partial response to Vidaza in the past. On a study using ON1910.NA, counts too low to go to Stanford on schedule.
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