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Old Fri Apr 25, 2014, 02:40 PM
Caregive Caregive is offline
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AAMDS on Charity Navigator

I looked this organization up on Charity Navigator and it is highly rated so I made a donation. You can check on it too.

http://www.charitynavigator.org/
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Old Fri Apr 25, 2014, 03:55 PM
triumphe64 triumphe64 is offline
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Caregive,

There is a great group of people that work there. They provide great hands on support if you need it as well as a very informative website and conferences. There is also a peer support network and community of hope groups that they encourage. I suggest you call them, if you haven't done so already.

Your money is well spent.

www.aamds.org
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Old Sat Apr 26, 2014, 01:16 AM
Caregive Caregive is offline
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I wanted people to know about their rating on Charity Navigator. We got something in the mail today on a charity I had never heard of. While I was researching that, I decided to check this organization here. Came out 4star. And yes, I know about aamds, that's how I got to the forums. Will be attending a converence in June which has MDS on its list of topics. Thanks.
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Old Sat Apr 26, 2014, 05:09 PM
triumphe64 triumphe64 is offline
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Quote:
Originally Posted by Caregive View Post
I wanted people to know about their rating on Charity Navigator. We got something in the mail today on a charity I had never heard of. While I was researching that, I decided to check this organization here. Came out 4star. And yes, I know about aamds, that's how I got to the forums. Will be attending a converence in June which has MDS on its list of topics. Thanks.
Good. I think I will be at the one in Detroit in July. Thanks for the heads up on Charity Navigator.
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Dallas, Texas - Age 81 - Pure Red Cell Aplasia began March 2005 - Tried IVIG - Then cyclosporine and prednisone. Then Danazol, was added. Then only Danazol . HG reached 16.3 March 2015. Taken off all meds. Facebook PRCA group https://www.facebook.com/groups/PureRedCellAplasia/
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