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#1
Thu Jul 11, 2013, 08:47 PM
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NEW DRUG for ANEMIA?
I just read this article. Supposedly this new drug shows promise for raising Hgb.
http://news.yahoo.com/rockwell-medic...205441042.html
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06/2004 my son was dx with SAA at the age of 10. No sibling BM match. He underwent ATG (H)/CsA. Relapsed 05/12 & dx'ed w/PNH. Currently in wait/see mode for Solaris as he is asymptomatic... 
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#2
Thu Jul 11, 2013, 10:18 PM
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Interesting. I would be happier if they mentioned bone marrow failures rather than just dialysis patients.
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Dallas, Texas - Age 81 - Pure Red Cell Aplasia began March 2005 - Tried IVIG - Then cyclosporine and prednisone. Then Danazol, was added. Then only Danazol . HG reached 16.3 March 2015. Taken off all meds. Facebook PRCA group https://www.facebook.com/groups/PureRedCellAplasia/
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#3
Thu Nov 21, 2013, 12:12 AM
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very interesting..ill take a look at it later..
thanks for sharing,
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#4
Thu Nov 21, 2013, 08:28 AM
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Thanks for posting this, maybe something to watch out for.
The article mentions that it will reduce the need for IV iron in patients with kidney problems, it will be interesting to understand the mechanism of action and how it works as anemic MDS patients do not need IV iron at all.
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Mother age 79, dx MDS RCMD low risk del 20q April 2013, no response to EPO, Danazol. pRBC tx dependent - 2 units every 3-4 weeks, exjade Dec 2013 - Mar2014, restarted Dec 2014 Last edited by Mseth : Thu Nov 21, 2013 at 08:30 AM. Reason: typo
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