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#1
Thu May 31, 2012, 08:37 AM
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I broke my own 10km record!
Various homelife things meant I didn't quite have the same hoopla lead-up to my annual 10km running race this year, and considering I now regularly bang out 18km on the weekend without much effort, I wasn't terribly concerned about finishing the race like I had in past years.
This year it was all about breaking my PB (Personal Best), which I logged in 2008, several months before my MDS and a full year before my transplant. And after coming within 7 seconds of it last year, I was out for blood!* But we've been having a heatwave in the UK, and on Sunday it hit 28C (83F) with blazing sunshine, and there were lots of runners dropping out from heat exhaustion along the course. I ran it with a friend who's at the same pace as me, and we locked into our 5min/km pace throughout, only leaving him at the 9km point to ramp up the speed and then sprint the final 200m!  By my watch, I finished in 49:45, but the official chip time says I completed it in 50:27! So not the sub-50 I thought I'd done, but still a new PB, and importantly, I've finally broken the record "old Melissa" had set before all this transplant stuff got in the way of life. And that feels great. Did I mention I've signed up to run my first full marathon in Amsterdam in October? Oh dear... * No, really! I'm again raising funds for Anthony Nolan, the UK's bone marrow registry charity.
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36/F - 1984 SAA treated with ATG [complete remission until] Oct 08 - burst blood vessels in eyes and low platelets; Jan 09 - AA & hypo-MDS; July 09 - BMT (RIC MUD PSCT) July 10 - 10k for Anthony Nolan (1yr post BMT! 53:48) Sep 10 - Wedding!  I've run 5 marathons now!! (PB 3:30!)
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#2
Thu May 31, 2012, 11:01 AM
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Congrats!!!!! I cannot even begin to entertain running a marathon under the best of health and conditions...not even when in my 20's.
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Marlene, wife to John DX w/SAA April 2002, Stable partial remission; Treated with High Dose Cytoxan, Johns Hopkins, June 2002. Final phlebotomy 11/2016. As of July 2021 HGB 12.0, WBC 4.70/ANC 3.85, Plts 110K.
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#3
Thu May 31, 2012, 02:12 PM
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Congratulations! You have been such an inspiration to me. Hopefully next year I will be back yacht racing.
PS read your transplant experience cover to cover with a "cuppa". Donna J.
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f68 MDS; abmt 1/12. ABO mismatch 11 mos. (70) transf. Ferr 3-5k. 8 phlebot. AGVHD to CGVHD. skin,eyes. lungs as of 10/13. muscle weakness &osteo long term steroids.photopheresis 2x wk as of 3-15.pred 20 eod,acyclovir, mepron, voriconazole, pantropazole, lisinopril, montelukast, anoro, azithromycin.
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#4
Thu May 31, 2012, 05:24 PM
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Congratulations, Melissa! That is absolutely awesome!
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Karen, age 62, dx MDS RAEB-2 1/8/10: pancytopenia WBC 2.7k/Hgb 7.4/Hct 22.1/Plt 19k; complex cytogenetics -3,del(5)(q14q33),-6,+8,+mar,17% blasts. MUD BMT Johns Hopkins 11/30/10. Dx tongue cancer 8/31/12. ok now. blog mausmarrow.com
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#5
Thu May 31, 2012, 07:35 PM
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Great News
Thanks so much for posting this, as a waiting for a transplant person, it is so neat to see people who are doing well.
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ET 2000, MF 2012, waiting for transplant...my blog Myelofibrosis - My life
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#6
Fri Jun 1, 2012, 07:56 AM
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Thanks everyone!! Training for Amsterdam officially starts in two weeks, omg.
Quote:
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36/F - 1984 SAA treated with ATG [complete remission until] Oct 08 - burst blood vessels in eyes and low platelets; Jan 09 - AA & hypo-MDS; July 09 - BMT (RIC MUD PSCT) July 10 - 10k for Anthony Nolan (1yr post BMT! 53:48) Sep 10 - Wedding! I've run 5 marathons now!! (PB 3:30!)
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#7
Fri Jun 1, 2012, 07:58 PM
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Wonderful wonderful news!
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Catherine, wife of Bruce age 75; diagnosed 6/10/11 with macrocytic anemia, neutropenia and mild thrombocytopenia; BMB suggesting emerging MDS. Copper deficient. Currently receiving procrit and neuopogen injections weekly, B12 dermal cream and injections, Transfusions ~ 5 weeks.
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#8
Thu Jun 28, 2012, 02:17 PM
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I am in awe! I doubt I would have been able to walk the course! Keep it up!
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Lori, female age 53 dx MDS-RAEB-II 15% blasts 10-2010. Induc Chemo 10/14/10 for 7 days - results unacceptable so 5 additional days chemo. Complete Remission 12/10/10!! SCT 1-11-11 remission achieved!!! BMB 1-29-11 100% Donor! cgvh eyes,skin (Caringbridge.org/visit/loripatrick)
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