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#1
Fri Dec 22, 2023, 02:50 AM
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12 Years Post Transplant For Pnh
It appears that this forum has very few active patients or caregivers, but obviously there are a few of us left. Other than having to take Jakafi for chronic GVHD, I am fortunate to have very few other transplant related issues. I still have regular visits w/ the same specialist who has been treating me since being diagnosed in 2011. I know who my unrelated donor is, but I have never received a reply to my email sent a long time ago.
Here in Colorado, there are still some occasional news stories regarding Covid, but I have never contracted it. I still meet the occasional person w/ their Covid stories. May we never return to the Covid years! Happy holidays to all and good luck to any rare or non-rare blood disease patients who visit this forum. Mario
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MARIO, 52, DIAG IN 2011 W/ PNH, MUD IN DEC 2011. MINI TRANS PSL DENVER/ SOME MILD GVHD. CURRENTLY TAKING JAKAFI FOR GVHD. 
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#2
Tue Dec 26, 2023, 01:10 PM
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Thanks for posting an update on your health. Glad that you are doing well and hope you continue to do so in the new year.
Take care, wishing you the best in 2024.
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Marlene, wife to John DX w/SAA April 2002, Stable partial remission; Treated with High Dose Cytoxan, Johns Hopkins, June 2002. Final phlebotomy 11/2016. As of July 2021 HGB 12.0, WBC 4.70/ANC 3.85, Plts 110K.
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