Home         Forums  

Go Back   Marrowforums > Bone Marrow Failure Diseases > MDS
Register FAQ Search Today's Posts Mark Forums Read

MDS Myelodysplastic syndromes

Reply
 
Thread Tools Search this Thread
  #1  
Old Sat Aug 31, 2013, 11:09 PM
Honeybun Honeybun is offline
Member
 
Join Date: Aug 2013
Location: Perth Western Australia
Posts: 90
Vegetarian issues with MDS

Hello

I have been vegetarian since I was 18. I have read some posts that salads and fruit etc that cannot be peeled should be avoided. What other issues may I encounter or is there anyone else that is a vegetarian that had issues.

I remember when I was diagnosed the first thought when they explained the red cells was to have a big steak. I know that will not fix it lol. But I expected it, as some drs have suggested eating meat again because of my chronic aneamia before my diagnosis.

I will miss having salads and fresh juice well when the time comes, I am not giving them up now!

Honey
__________________
Dx June 2013 MDS del 5q and 7t. Further chromosone changes August 2017. Lenolidomide and 10 months on Azacytadine failed. Transition to AML August 2018 failed induction chemo. Trial drug FT2101 failed at 6 months. Next on Venetoclax with cytoterabine.
Reply With Quote
  #2  
Old Sat Aug 31, 2013, 11:27 PM
Chirley Chirley is offline
Member
 
Join Date: Oct 2007
Location: Logan City Australia
Posts: 1,100
Also be careful with undercooked eggs and soft cheeses.
__________________
Copper deficiency bone marrow failure (MDS RAEB 1), neuromyelopathy.
FISH reported normal cytogenetics but gene testing showed
Xq 8.21 mutation
Xq19.36 mutation
Xq21.40. mutation
1p36. Mutation
15q11.2 deletion
Reply With Quote
  #3  
Old Sat Aug 31, 2013, 11:30 PM
Honeybun Honeybun is offline
Member
 
Join Date: Aug 2013
Location: Perth Western Australia
Posts: 90
noooooooooooooooo not the cheese!
__________________
Dx June 2013 MDS del 5q and 7t. Further chromosone changes August 2017. Lenolidomide and 10 months on Azacytadine failed. Transition to AML August 2018 failed induction chemo. Trial drug FT2101 failed at 6 months. Next on Venetoclax with cytoterabine.
Reply With Quote
  #4  
Old Mon Sep 2, 2013, 07:00 AM
Cheryl C Cheryl C is offline
Member
 
Join Date: Dec 2011
Location: Lake Macquarie, Australia
Posts: 843
Dear Honey - I am 99% vegetarian and non-dairy. Have been all my life and continuing since diagnosed with MDS. Occasionally eat fish and probably 2 eggs a week max, so I'm close to being vegan. The research I've read is that meat-eaters are just as likely to be anaemic as vegetarians.

I eat lots of raw fruits and vegies - I just wash them carefully. I don't even peel unless the skin isn't edible. You can buy really good non-toxic vegie washes. During the transplant process it's a different story though - when I was preparing for transplant I resolved to do as I was told except eat red meat - I don't think I could ever do that!

All the very best! I am praying for all the transplant people on the forum. It's a huge decision to make.
__________________
Dx MDS RAEB 10% blasts + hypogammaglobulinemia, Sep 2011. Jan 2012 BMB - blasts down to 2% w/out treatment so BMT cancelled. Re-diagnosis RCMD. Watch and wait from Feb 2012. IVIg 5-weekly. New diagnosis Oct 2019 AML 23% blasts in marrow, 10% blasts in peripheral blood.
Reply With Quote
  #5  
Old Mon Sep 2, 2013, 01:28 PM
Honeybun Honeybun is offline
Member
 
Join Date: Aug 2013
Location: Perth Western Australia
Posts: 90
Cheryl I can't imagine eating a steak etc either. I totally forgot there are vege washes. Where can you buy them? I do remember reading something about a home made vege wash. I think vinegar was involved. Off to google.
__________________
Dx June 2013 MDS del 5q and 7t. Further chromosone changes August 2017. Lenolidomide and 10 months on Azacytadine failed. Transition to AML August 2018 failed induction chemo. Trial drug FT2101 failed at 6 months. Next on Venetoclax with cytoterabine.
Reply With Quote
  #6  
Old Mon Sep 2, 2013, 01:36 PM
Honeybun Honeybun is offline
Member
 
Join Date: Aug 2013
Location: Perth Western Australia
Posts: 90
Here's what I found.

If you want to make sure that your veggies are really clean, and free of as many pesticides as possible. Try this easy washing system:

The Spray: Grab a small sprayer (around 16 -ounces), and fill with water. Add 2tbsp lemon juice and 1 tbsp baking soda. Shake gently before use. Spray over your fruits and veggies. Leave for 10 minutes, and then wipe or rinse off.

The Soak: This is great as a second step, but also perfect for leafy greens such as kale, spinach, lettuce etc. Fill a sink with cold water. Add 1 cup white vinegar and 1/4 cup salt. Swish around. Toss in your veggies. Leave to soak for 20 minutes. Rinse thoroughly, and you are good to go.

Tip: Although you should peel the skins of most fruits, you need to thoroughly clean fruits like berries. I would try “The Soak” for all your berries, but as they are delicate, just soak for 10 minutes. Don’t worry, the vinegar smell/taste will be non-existent after they have been gently rinsed.
__________________
Dx June 2013 MDS del 5q and 7t. Further chromosone changes August 2017. Lenolidomide and 10 months on Azacytadine failed. Transition to AML August 2018 failed induction chemo. Trial drug FT2101 failed at 6 months. Next on Venetoclax with cytoterabine.
Reply With Quote
  #7  
Old Tue Sep 3, 2013, 08:58 AM
Marlene Marlene is offline
Member
 
Join Date: Oct 2006
Location: Springfield, VA
Posts: 1,412
don't use the sink

I soaked vegetable and fruits in vinegar and water but NOT in the sink. The sink is breeding ground for germs. Use a soup pot or some other large container.

You can also use a 3% hydrogen peroxide + vinegar solution.
__________________
Marlene, wife to John DX w/SAA April 2002, Stable partial remission; Treated with High Dose Cytoxan, Johns Hopkins, June 2002. Final phlebotomy 11/2016. As of July 2021 HGB 12.0, WBC 4.70/ANC 3.85, Plts 110K.
Reply With Quote
  #8  
Old Tue Sep 3, 2013, 09:11 AM
Cheryl C Cheryl C is offline
Member
 
Join Date: Dec 2011
Location: Lake Macquarie, Australia
Posts: 843
I was thinking of Amway Veggie Wash, but your solution is easy and much cheaper too!
__________________
Dx MDS RAEB 10% blasts + hypogammaglobulinemia, Sep 2011. Jan 2012 BMB - blasts down to 2% w/out treatment so BMT cancelled. Re-diagnosis RCMD. Watch and wait from Feb 2012. IVIg 5-weekly. New diagnosis Oct 2019 AML 23% blasts in marrow, 10% blasts in peripheral blood.
Reply With Quote
  #9  
Old Tue Sep 3, 2013, 09:22 AM
Honeybun Honeybun is offline
Member
 
Join Date: Aug 2013
Location: Perth Western Australia
Posts: 90
Yes Marlene I agree. I thought most would amend the sink and water bit. But probably good to point it out.

Wow Amway is still around!
__________________
Dx June 2013 MDS del 5q and 7t. Further chromosone changes August 2017. Lenolidomide and 10 months on Azacytadine failed. Transition to AML August 2018 failed induction chemo. Trial drug FT2101 failed at 6 months. Next on Venetoclax with cytoterabine.
Reply With Quote
  #10  
Old Tue Sep 3, 2013, 07:34 PM
Chirley Chirley is offline
Member
 
Join Date: Oct 2007
Location: Logan City Australia
Posts: 1,100
When I worked Infection Management we took random swabs. The flora that was found living under the sink plug and the outlet was horrendous.

The next worse were the elevator buttons.
__________________
Copper deficiency bone marrow failure (MDS RAEB 1), neuromyelopathy.
FISH reported normal cytogenetics but gene testing showed
Xq 8.21 mutation
Xq19.36 mutation
Xq21.40. mutation
1p36. Mutation
15q11.2 deletion
Reply With Quote
Reply


Thread Tools Search this Thread
Search this Thread:

Advanced Search

Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

vB code is On
Smilies are On
[IMG] code is On
HTML code is Off
Forum Jump

Similar Threads
Thread Thread Starter Forum Replies Last Post
MDS - VA assigns diagnostic code 7725 Tommy Daniels MDS 4 Sun Jan 22, 2017 04:51 PM
New Tool: MDS Classification Marrowforums Site Announcements 7 Tue Jan 4, 2011 06:12 AM
Battle with MDS - A successful story informer Alternative Treatments 4 Sat May 22, 2010 09:26 AM


All times are GMT -4. The time now is 04:54 PM.


Powered by vBulletin® Version 3.6.7
Copyright ©2000 - 2024, Jelsoft Enterprises Ltd.
Forum sites may contain non-authoritative and unverified information.
Medical decisions should be made in consultation with qualified medical professionals.
Site contents exclusive of member posts Copyright © 2006-2020 Marrowforums.org