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#1
Sun Sep 21, 2014, 11:04 AM
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How long for a diagnosis
I am curious to know how long it usually takes to get a diagnosis (of any of the blood disorders). My blood levels have been decreasing since January of this year. I have been seeing a hematologist for almost two months now. I have had numerous blood tests (CBCs, tests for virus antibodies, etc.), a bone marrow biopsy (was negative for AML and MDS), a CT scan (radiologist suggested a MRI), and a MRI (radiologist suggested another bone marrow biopsy under CT guidance). I am scheduled for another bone marrow biopsy to be done under CT guidance. While blood counts aren’t critically, it is disconcerting to know that something is not right but not know what is wrong and not know what an appropriate treatment is. My only physical symptom is that I am extremely tired all the time. Any opinions would be greatly appreciated. My current counts are:
Platelets: 47 x10E3/uL Hemoglobin: 9.7 g/dL MCH: 38.0 pg EOS: 10 % MCV: 115 fl RDW: 18.1 % RBC: 2.55 x10E6/uL WBC: 2.3 x10E3/uL 3.4 Hematocrit: 29.4 % Neutrophils: (Absolute) 1.1 x10E3/uL MCHC 33.0: g/dL
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Prostate Cancer: Treated in early 2013 with HDR Brachytherapy. MDS-RCMD: Oct 2014. Biopsies: 46,XY,t(7;18)[2]: 46,XY,del(7)( q22)[3]: 45,XY,-7[6]: 45,XY,-7[10]: 45,XY,-7[13]. HSCT in April 2016. Last edited by Data : Sun Sep 21, 2014 at 01:17 PM. 
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#2
Sun Sep 21, 2014, 11:24 AM
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I can tell you that my father was suspected to have lymphoma but after 3 BMB's they couldn't get a diagnosis. Then they did the CT guided BMB and it still came back negative. It sounds like they are having trouble diagnosing you....Lack of energy is a symptom of anemia(Low Hemoglobin) and yours is low but not crazy low but still could be why you're so tired. On another note this is a depressing and anxious time and that too can make you tired. If you can do things do them. You'd be surprised how a walk around the block can make a difference.
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#3
Sun Sep 21, 2014, 01:16 PM
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I agree
Quote:
I appreciate your comments and agree. I was hospitalized a few years ago for anemia and my hemoglobin was worse than now and I wasn't this tired. I do try and get out as much as I can. Thanks again!! 
__________________
Prostate Cancer: Treated in early 2013 with HDR Brachytherapy. MDS-RCMD: Oct 2014. Biopsies: 46,XY,t(7;18)[2]: 46,XY,del(7)( q22)[3]: 45,XY,-7[6]: 45,XY,-7[10]: 45,XY,-7[13]. HSCT in April 2016. Last edited by Data : Sun Sep 21, 2014 at 04:36 PM.
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#5
Sun Sep 21, 2014, 09:29 PM
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Have they done a retic test?
__________________
Dallas, Texas - Age 81 - Pure Red Cell Aplasia began March 2005 - Tried IVIG - Then cyclosporine and prednisone. Then Danazol, was added. Then only Danazol . HG reached 16.3 March 2015. Taken off all meds. Facebook PRCA group https://www.facebook.com/groups/PureRedCellAplasia/
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#6
Mon Sep 22, 2014, 06:25 AM
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OMG Reality check
Quote:
__________________
Prostate Cancer: Treated in early 2013 with HDR Brachytherapy. MDS-RCMD: Oct 2014. Biopsies: 46,XY,t(7;18)[2]: 46,XY,del(7)( q22)[3]: 45,XY,-7[6]: 45,XY,-7[10]: 45,XY,-7[13]. HSCT in April 2016.
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#7
Mon Sep 22, 2014, 06:26 AM
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No Retic test
Quote:
__________________
Prostate Cancer: Treated in early 2013 with HDR Brachytherapy. MDS-RCMD: Oct 2014. Biopsies: 46,XY,t(7;18)[2]: 46,XY,del(7)( q22)[3]: 45,XY,-7[6]: 45,XY,-7[10]: 45,XY,-7[13]. HSCT in April 2016.
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#8
Mon Sep 22, 2014, 10:10 AM
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Quote:
__________________
Dallas, Texas - Age 81 - Pure Red Cell Aplasia began March 2005 - Tried IVIG - Then cyclosporine and prednisone. Then Danazol, was added. Then only Danazol . HG reached 16.3 March 2015. Taken off all meds. Facebook PRCA group https://www.facebook.com/groups/PureRedCellAplasia/
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