Home         Forums  

Go Back   Marrowforums > Bone Marrow Failure Diseases > AA
Register FAQ Search Today's Posts Mark Forums Read

AA Aplastic anemia

Thread Tools Search this Thread
Old Sat Nov 5, 2016, 11:13 PM
lillianr lillianr is offline
Join Date: Nov 2016
Location: auckland new zealand
Posts: 1
new to aa

feeling very new to aa,just about to have atg treatment been told because of my age (65)it may not work ,has anybody my age had atg.
Reply With Quote
Old Mon Nov 7, 2016, 11:13 AM
Margaret W Margaret W is offline
Join Date: Dec 2015
Location: Michigan
Posts: 31
Welcome, lillianr. I'm sorry you've been diagnosed with this... It was 44 years ago today that I was diagnosed with AA, and I'm a year older than you.

I had equine ATG at age 37 in 1987, but it never really kicked in and so I'm considered an "ATG failure." Now they want to do rabbit ATG on me because I'm back in the "severe AA" range, but... We'll see.

I've never heard that one's age would undermine the effects of either type of ATG... And I've been evaluated by the folks at the NIH, Johns Hopkins, the Cleveland Clinic and now I've gone back to the University of Michigan, which is where I started out back in 1972.

Maybe someone else here has been through ATG for the first time at our age... Best wishes to you, and prayers for your course of treatment and recovery.

Margaret, SAA patient diagnosed 1972; ATG 1987; moderate AA for years; hep. C from transfusion 1987; now SAA is back.
Reply With Quote
Old Tue Nov 8, 2016, 12:39 PM
Hopeful Hopeful is offline
Join Date: Jan 2009
Location: California, USA
Posts: 695
Hi lillian,

Try to remain positive through your treatment and recovery. As with all of these treatments, there is a chance that they won't work, but there is also a chance that they will.

I think that the issue with aging is that it takes longer for everything to heal! The bone marrow is probably no exception. So be patient after the treatment. The immune attack will have been thwarted, but your marrow will be extremely fragile and it will take time to rebuild. Take every extra precaution to prevent infections during this time.

Best of luck!
52 yo female, dx 9/08, AA/hypo-MDS, subclinical PNH, ATG/CsA 12/08, partial response. Tried slow cyclosporine taper over 4+ years. Platelets fell, so back on cyclosporine. Trisomy 6 clone in 5% of cells.
Reply With Quote
Old Sun Nov 13, 2016, 04:33 PM
Tripleal Tripleal is offline
Join Date: Oct 2016
Location: United kingdom
Posts: 3
Smile Stay positive always

Good luck with the atg I'm 65 now was 64 when I had it,my specialist said it works on about 3 out of every 5 people unfortunately I wasn't one of the 3 . since had unrelated bmt 15 months ago , and at the present time I'm doing well. so stay positive . God is good
Reply With Quote
Old Mon Nov 14, 2016, 04:26 PM
vickij vickij is offline
Join Date: Apr 2013
Location: Connersville, Indiana
Posts: 117

I had horse ATG for AA when I was 58. it helped for about a year before I was told that I had MDS. I had a bone marrow transplant 3 1/2 years ago at age 60. I was told that as long as I was healthy age wasn't an issue. I have been doing good with just a few bumps along the way. Good luck to you.
62 yr old female. dx AA 3/12.treated with ATG 4/12.dx MDS 4/13. MUD BMT on June 25th,2013
Reply With Quote

Thread Tools Search this Thread
Search this Thread:

Advanced Search

Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

vB code is On
Smilies are On
[IMG] code is On
HTML code is Off
Forum Jump

Similar Threads
Thread Thread Starter Forum Replies Last Post
25 years after AA, now I've got AA and PNH squirrellypoo Tell Your Story 12 Fri Feb 20, 2015 10:47 PM
AA from Epilepsy Drugs? bchenaille AA 16 Wed Dec 28, 2011 08:20 AM
How Does AA Progress to MDS? Greg H AA 10 Fri Sep 9, 2011 07:00 AM
Newbie Story / "not typical" AA presentation Deanna16 Tell Your Story 4 Fri Feb 12, 2010 10:18 AM
My experience with AA Hawaii Bill Tell Your Story 5 Fri Jun 13, 2008 03:31 AM

All times are GMT -4. The time now is 01:12 PM.

Powered by vBulletin® Version 3.6.7
Copyright ©2000 - 2018, Jelsoft Enterprises Ltd.
Forum sites may contain non-authoritative and unverified information.
Medical decisions should be made in consultation with qualified medical professionals.
Site contents exclusive of member posts Copyright 2006-2018 Marrowforums.org