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Transplants Bone marrow and stem cell transplantation

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Old Mon Oct 14, 2013, 06:58 PM
Kim2007 Kim2007 is offline
Join Date: Nov 2007
Posts: 16

How long did it take to be transfusion dependent after bmt. How long until you felt better after saa?
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Old Mon Oct 14, 2013, 08:46 PM
Neil Cuadra Neil Cuadra is offline
Join Date: Jul 2006
Location: Los Angeles, California
Posts: 2,518

I assume you are asking how long to become transfusion independent after a transplant. My wife was transfusion dependent before and during her transplant. She had 5 transfusions in the 4 months following the transplant, and none since then.
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Old Sat Oct 26, 2013, 06:58 PM
dfantle dfantle is offline
Join Date: Jan 2012
Location: bellevue, wa
Posts: 150
Hi Kim, my understanding is transfusion dependence varies for each patient.

I had a non-myeloablative unrelated donor transplant end of January 2013, & was platelet transfusion free by week 2 (after needing them every 2-5 days previously) with normal platelets by week 3 or 4, and red blood cell dependent by 3 months, but was told this can take 1 year. Though I'm now almost 9 months post & have been transfusion free since end April, my hematocrit finally reached normal (36 for women) end Sept at month 8. my hematocrit was at 35 for 4 months so I was thrilled to finally reach normal. The only remaining count we're still waiting to become normal is my IG-G (immunoglobulin G). I've still needed an IG-G infusion every 2 months, though my team has told me this can take a bit more than 1 year post to reach normal, they typically stop IG-G infusions at 10 months to encourage patients systems to produce it without assistance.
Age 54; DX Heavy Chain (AH) Amyloidosis 6/10; AutoSCT 3/11; Amyloidosis remission 6/11; DX SAA 7/11; Horse ATG 3/12; Mini MUD SCT 1/13; Recovered from SAA 5/13 & feeling great
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Old Sun Oct 27, 2013, 12:51 AM
Heather8773 Heather8773 is offline
Join Date: Jan 2013
Location: Houston, TX
Posts: 254
Kim my husband has needed blood and or platelets every couple days since being admitted. He just recied blood and platelets 2 days agoand he is on day +16 . I figured it was just due to them wiping out all off his stem cells and maybe agrivating his PNH as those cells were being destroyed. But that was just a thought not something I ever verified.
His team seems to feel like its normal to need blood products that's one reason they do a CBC every morning. But everyone has a different amount they will need. their only concern on the transfusions is the iron (which I'm sure you know)
Can't say I wasn't shocked though from him going from 4 wks between transfusions to a couple days between so I hear ya.
Heather, wife of Ronald 36; dx PNH 2012; Dx VSAA 2013; eculizumab(Solaris) hATG 2/20/13 cyclosporine 400 mg daily. 37 units RBC and 15 units of platelets. Post BMT -pentam,vorconizole,valtrex, valcyte, actigall, Pepcid , prograf, magnesium.
10/10 MUD 10/10/13
Now no PNH or AA. Mixed Chimerisim
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