Home         Forums  

Go Back   Marrowforums > Bone Marrow Failure Diseases > MDS
Register FAQ Search Today's Posts Mark Forums Read

MDS Myelodysplastic syndromes

Reply
 
Thread Tools Search this Thread
  #1  
Old Wed Dec 10, 2008, 09:43 PM
LynnI LynnI is offline
Member
 
Join Date: Jun 2008
Location: Ontario, Canada
Posts: 99
My early Christmas present

As of this week, my HGB is now 147, WBC and PLTs continue to be normal.
I am also over 22 wks tx independant and going strong.
The Valproic Acid certainly has been an excellent treatment for me and we are hopeful that it continues to be longterm.
I would like to thank everyone for your suppose, best wishes, compassion and knowledge especially when I was so scared and new to this jounery of fighting MDS. My heart goes out to those that have this damned disease worse than I do and to those who have lost their loved ones.

Happy and safe Holidays
Lynn
Reply With Quote
  #2  
Old Thu Dec 11, 2008, 05:24 AM
Birgitta-A Birgitta-A is offline
Member
 
Join Date: Oct 2007
Location: Stockholm, Sweden
Posts: 1,918
Valproic acid

Hi Lynn,
How wonderful that you have such a positive response when you take a histone deacetylase inhibitor like Valproic acid ! It gives hope to us becase the new histone deacetylase inhibitors will hopefully be more effective and not give fatigue in so many patients as Valproic acid.
Peaceful Christmas!
Birgitta-A
Reply With Quote
  #3  
Old Sat Dec 13, 2008, 03:01 PM
Ruth Cuadra Ruth Cuadra is offline
Administrator
 
Join Date: Jul 2006
Location: Los Angeles, California
Posts: 616
Dear Lynn,

You can be our poster girl for Valproic Acid. This is great news. Happy Holidays!

Regards,
Ruth
__________________
Diagnosed AA 10/96, MDS/RA 6/98, MUD/BMT 10/6/98
Reply With Quote
Reply


Thread Tools Search this Thread
Search this Thread:

Advanced Search

Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

vB code is On
Smilies are On
[IMG] code is On
HTML code is Off
Forum Jump

Similar Threads
Thread Thread Starter Forum Replies Last Post
Merry Christmas bebop Site Comments 3 Tue Dec 25, 2012 07:42 PM
what a fun way to spend the lead up to Christmas! SLB MDS 4 Sun Dec 2, 2012 04:47 AM
Without Diagnosis and early stages (hypoplastic MDS or AA) CatherineJ MDS 16 Sun Jan 29, 2012 04:30 PM
Merry Christmas bebop MDS 16 Sat Dec 31, 2011 05:52 PM


All times are GMT -4. The time now is 03:41 PM.


Powered by vBulletin® Version 3.6.7
Copyright ©2000 - 2024, Jelsoft Enterprises Ltd.
Forum sites may contain non-authoritative and unverified information.
Medical decisions should be made in consultation with qualified medical professionals.
Site contents exclusive of member posts Copyright © 2006-2020 Marrowforums.org