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PNH Paroxysmal nocturnal hemoglobinuria

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Old Tue Apr 13, 2021, 01:06 PM
Nickie W Nickie W is offline
Join Date: Apr 2021
Location: Redlands Ca
Posts: 1
HRT with PNH


I知 new to this forum I致e had PNH for 18 years now. I知 being treated with Ultromaris. I知 41 years old and I知 starting to have peri menopause symptoms, so my endocrinologist gave me a low dose birth control. I知 scared to take it because obviously blood clots, however my doctor called Alexion and they said patients that were on HRT while taking Soliris did not have blood clots while on the study. So I was just wondering if any of you ladies have gone through this and had any experiences that you could share with me? Any help would be greatly appreciated.

God Bless!
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