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MDS Myelodysplastic syndromes

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  #1  
Old Mon Apr 3, 2017, 06:54 AM
Bossywife Bossywife is offline
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BM Biopsy question

My husband needs to go to Vancouver for a Bone Marrow Biopsy (for a Myeloid Gene Panel).

It means he will be having the biopsy Wednesday morning and taking a bus home on Thursday morning (it is a 12 hour bus ride).

Does this seem doable? Do you think that I should travel with him? Could there be complications the day of the procedure?

He is taking the bus because it is a government bus that takes people who live in Northern BC to Vancouver, and it's super cheap.

Thanks in advance.
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Husband (61) dx RAEB1 Apr 2015 after long term bad CBCs (first discovered Apr 2008 after an unknown infection had him hospitalized), currently on watch & wait with monthly bloodwork. Myeloid Gene Panel testing done Aug 2017, showed nothing worrisome. CEBPA mutation
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  #2  
Old Mon Apr 3, 2017, 08:17 AM
lisa3112 lisa3112 is offline
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Hi, personally I doubt there will be any issues at all in terms of the biopsy. I've had quite a few and he will be up and walking normally in less then 2 hours. A 12 hour bus ride sounds hard for anyone though, but you do what you have to! Hope he has a good book! Good luck with results!
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Now 30yr old. Diagnosed AML dec 2015 (Most likely MDS prior). Trisomy 6. Runx1 mutation also. Had induction and consolidation chemo. Marrow failure ++ so SCT on 21st of March with MUD. Married with a 1yr old!
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  #3  
Old Mon Apr 3, 2017, 11:02 AM
bailie bailie is offline
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I just had my 20th BMB this last week. As we realize everyone is different but I have had zero problems with any of them. They have me continue lying down for 15 minutes following the procedure and then I hop off the table and walk out. I have golfed on the next day on occasion. They do stipulate that I can't drive for eight hours because of the Fentanyl 50 mcg IV that they give me.

The next day after the procedure the feeling is a very minor bruise which for me is almost undetectable for any discomfort. We wish him the best!!
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age 70, dx RAEB-2 on 11-26-2013 w/11% blasts. 8 cycles Vidaza 3w/Revlimid. SCT 8/15/2014, relapsed@Day+210 (AML). Now(SCT-Day+1005). Prepping w/ 10 days Dacogen for DLI on 6/9/2017.
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  #4  
Old Mon Apr 3, 2017, 01:53 PM
Neil Cuadra Neil Cuadra is offline
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Complications from bone marrow biopsies are rare. Soreness and grogginess and more common than anything serious.

I think there's a strong change that it will be uneventful and that your help won't be needed. But that leaves a small chance that you could help with something that comes up unexpectedly. Since it's not a big expense, and if it wouldn't be a big inconvenience, then I suggest that you go along just in case.
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  #5  
Old Mon Apr 3, 2017, 05:50 PM
Dick S Dick S is offline
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I've had all of mine without sedation, just a local at the insertion sight. I usually just clothe up afterward and go home, which, by the way, is a 2 1/2 hour drive for me. Never had a problem.
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Dick S, diagnosed Feb. 2008 with MDS. Last BMB April 2016. New diagnosis is CMML stage 1.
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  #6  
Old Mon Apr 3, 2017, 10:36 PM
Sally C Sally C is offline
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Location: Chesterfield, Va.
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Hi Bossywife,
As the wife of someone who has had numerous bone marrow biopsies - only one was a problem as he passed out in a restaurant from dehydration. Having said that, I would never let him go through one without my being there. Were the tables turned, I know I would want him there - and he would be there.
Best wishes,
Sally
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  #7  
Old Wed Apr 5, 2017, 03:35 PM
Deborah52 Deborah52 is offline
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I'm with Sally

I'm with Sally. 12 hours is a long bus ride. Having a little help could go a long way if there were complications.
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  #8  
Old Wed Apr 5, 2017, 08:54 PM
bailie bailie is offline
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I think two people would make a better trip. I had two BMBs (one on each hip) about four hours ago. They didn't want me driving (and I knew it going in) so it was important that my wife was with me.
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age 70, dx RAEB-2 on 11-26-2013 w/11% blasts. 8 cycles Vidaza 3w/Revlimid. SCT 8/15/2014, relapsed@Day+210 (AML). Now(SCT-Day+1005). Prepping w/ 10 days Dacogen for DLI on 6/9/2017.
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