Home         Forums  

Go Back   Marrowforums > Bone Marrow Failure Diseases > MDS
Register FAQ Search Today's Posts Mark Forums Read

MDS Myelodysplastic syndromes

Reply
 
Thread Tools Search this Thread
  #1  
Old Sun Nov 7, 2010, 10:25 AM
Rosemary Rosemary is offline
Member
 
Join Date: Apr 2010
Location: Brampton, Ontario, Canada
Posts: 11
Some good news.

Just seen my oncologist and my blood count has gone up by seven points, so we are both very pleased. I was diagnosed with MDS in January 2008, and in July he discovered that I am 5q-, so he applied for me to take Revlimid. I started taking it in October 2009, and the blood count went from 75 to ll5. Since then it has dropped a point or two each time, so I was a little concerned that it was losing its effectiveness. However, now it is ll9, which is the best it has been in a long time and I am feeling really great. Such a change from last year, when I could hardly drag one foot after the other.
Also, I now take meditation classes at our local Wellspring, and I am convinced that the healing meditations I am learning there are helping me too.
So I want to share the good news with my Marrowforums friends.
I find Marrowforums very interesting, and the recent webinar put out by the Association was very good too. In Canada we have AAMAC, and we just had a very good Education Day, when we listened to many oncologists and were able to ask questions and talk to them individually. This is a confusing disease and it's good to talk to others who have it and exchange information.
Best wishes to you all.
Reply With Quote
  #2  
Old Sun Nov 7, 2010, 12:30 PM
Birgitta-A Birgitta-A is offline
Member
 
Join Date: Oct 2007
Location: Stockholm, Sweden
Posts: 1,918
5q- and Revlimid

Hi Rosemary,
How wonderful that you have had such a good response when you take Revlimid ! I remember posts several years ago about how long time Revlimid could have effect and there were patients who had good effect after more than 5 years.
Kind regards
Birgitta-A
Reply With Quote
Reply


Thread Tools Search this Thread
Search this Thread:

Advanced Search

Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

vB code is On
Smilies are On
[IMG] code is On
HTML code is Off
Forum Jump

Similar Threads
Thread Thread Starter Forum Replies Last Post
Good news! lisa3112 Transplants 5 Wed Sep 14, 2016 06:47 AM
Good news...? Platelets and Hb decreased paulaespada AA 4 Tue Nov 3, 2009 09:56 AM
Good news 1 year after ATG paulaespada AA 2 Thu Jun 18, 2009 05:34 PM
Not good news Linda MDS 7 Mon Oct 22, 2007 07:02 PM
Good new's on Dr.'s visit kertkkey2007 Tell Your Story 2 Fri Sep 7, 2007 03:27 PM


All times are GMT -4. The time now is 07:27 PM.


Powered by vBulletin® Version 3.6.7
Copyright ©2000 - 2024, Jelsoft Enterprises Ltd.
Forum sites may contain non-authoritative and unverified information.
Medical decisions should be made in consultation with qualified medical professionals.
Site contents exclusive of member posts Copyright © 2006-2020 Marrowforums.org