Stem Cell Transplant and MDS, Need Information

[alicat4790]

Has anyone had a Stem Cell Transplant? Did you have MDS? I am looking for someone with MDS that has gone through this. My sister has MDS and I want to know what she is going to have to go through! Please email me at: alicat0226@hotmail.com

Alison

[Ruth Cuadra]

Dear Alison,

I had a bone marrow transplant for MDS in 1998. At that time, stem cells were just beginning to be used for transplants, but the process is mostly the same whether you receive bone marrow or stem cells. You and your sister can read the details of my story on this site. But, keep in mind that a lot has changed for the better in the past 10 years. Patients are more comfortable throughout and recover faster than they used to. Does your sister have a donor yet?

Let me know how I can help.

Regards,
Ruth Cuadra

[Cathy]

I had a stem cell transplant in February for MDS. It was a medium intensity transplant and i tolerated it very well. I was in the hospital about a month and then for the next few months I stayed closed to home and out of the general public to avoid being exposed to sick people. I am now six months post transplant and I am preparing to go back to work in a couple of weeks. It was a long ordeal, but easier than I expected it to be. I would be happy to answer any questions you might have about my experience.

Take care,
Cathy

[All4DK]

Cathy,

I would love to speak to you about your transplant as well as post transplant experience.

Brief Bio: Mom dx with CMML/MDS in Oct and we went to Weill today to meet with Transplant specialist who gave very high % for full recovery since she has about 3% blasts and handling decitabine very well.

Could you perhaps shoot me an email at all4dk@yahoo.com or if you are more comfortable on this, I can manage. I would prefer email because I recently taught my mom how to check my email.

Thanks soo much!

Joe