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#1
Sun Sep 16, 2012, 06:16 PM
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GVHD-treatments other than steroids
OK so the steroid Budesonide gave me relief from GI GVHD, however the side effects are intolerable.
Is anyone aware of any other treatment, or meds for mild-mid GI issues caused by GVHD? (I am currently on Cyclosporine and Virconazole and just finished Cipro; all who multiply the side effects of the steroid on the body) thanks Donna
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f68 MDS; abmt 1/12. ABO mismatch 11 mos. (70) transf. Ferr 3-5k. 8 phlebot. AGVHD to CGVHD. skin,eyes. lungs as of 10/13. muscle weakness &osteo long term steroids.photopheresis 2x wk as of 3-15.pred 20 eod,acyclovir, mepron, voriconazole, pantropazole, lisinopril, montelukast, anoro, azithromycin. 
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#2
Sun Sep 16, 2012, 08:24 PM
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Hi, I don't have any personal knowledge, just something someone told me so please take it with a pinch of doubt.
A fellow patient who had a BM transplant told me that they had GI issues and they were taking fish oil with beneficial results. I don't know what other treatment they were on though. Regards Chirley
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Copper deficiency bone marrow failure (MDS RAEB 1), neuromyelopathy. FISH reported normal cytogenetics but gene testing showed Xq 8.21 mutation Xq19.36 mutation Xq21.40. mutation 1p36. Mutation 15q11.2 deletion
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