RAEB-2 How often do you have blood levels checked?

[Eva's daughter]

Hi all,

Anyone have a round about figure of how often should my Mum be having blood tests (with 11% blasts)?

[bailie]

I have had CBCs every two weeks and sometimes every three weeks for the last three years. I have charted all of these results to see if there are trends. The surprising thing for me is how much the results can change from time to time.

[Cheryl C]

Like Bailie, I have been charting my blood results (usually 4-weekly) for years now. It's interesting to compare the yearly averages and so on.

How often is your mum seeing her specialist?

[Eva's daughter]

hmmm. Mums last blood test was almost 4 weeks ago. Best ring the haematologist and check when her next one'll be.

Thanks for info, theres so much to know about this disease!

[Katehhi]

I am over 80. Just starting 3rd round of Revlimid. Get Epo shot every two weeks. How long for positive test and do you start to feel better as time goes on? First post.