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Old Wed Dec 3, 2008, 09:43 PM
towncarlady towncarlady is offline
Join Date: Nov 2008
Location: Gardendale, Alabama, USA
Posts: 36
Marrow Forums

I was deighted to find this area of information; however, I do wish more people would post. I have found it a source of comfort to see patients who are surviving this disorder for longer periods of time than I have been diagnosed. It also helps to know of others who are dealing with MDS. Thanks to all who post.
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Old Thu Dec 4, 2008, 11:48 AM
Neil Cuadra Neil Cuadra is offline
Join Date: Jul 2006
Location: Los Angeles, California
Posts: 2,500
The primary value of Marrowforums comes from the members who participate.

Most of us first heard about these diseases when we were diagnosed or someone we care about was diagnosed. We learned from those who came before us.

As we meet the new patients and loved ones who have followed us, we have the opportunity to return the favor by sharing what we've learned, the way others shared with us. And we all continue to learn from each other.
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Old Tue Feb 3, 2009, 08:30 AM
mannythedog mannythedog is offline
Join Date: Sep 2007
Location: Marble, NC
Posts: 103
Thank you

I would like to, again, thank everyone here at marrow forms. I came here looking for answers to my questions that no one here could answer.

It has been a release point and had allow me to ask questions, as well as give answers to many questions. I have been blessed by reading many of your stories and thank all of you for opening up your life's to total strangers. Thank you for letting me vent my emotions, and yes, I talk as much as i write.

My last statement, unless asked, "Patients, be patient with your care givers. They're new at this and you may be frustrated, but so are they seeing you sick".

My father said toward the end, "It was much easier being the patient, and I love you. I don't know what I would have done without you".

Thank you all again,

Son of Bob
Scott, Son of BOB. My father, diagnosed 9/07 with "hypo-cellular acute bone marrow Leukemia" AA, AML & MDS. He was 77 years old 08/25/2008. He was being treated with Ara-C, blood and platelets w/needed. Stopped blood treatments 12/08/08 & passed 12/23/2008. Pop was the best father and friend.
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