Home         Forums  

Go Back   Marrowforums > Bone Marrow Failure Diseases > News and Events
Register FAQ Search Today's Posts Mark Forums Read

News and Events News related to bone marrow failure diseases

Reply
 
Thread Tools Search this Thread
  #1  
Old Thu Sep 25, 2008, 10:45 AM
Sherri Sherri is offline
Member
 
Join Date: Mar 2006
Location: Cleveland, Ohio
Posts: 22
Want to be in pictures???

As you may or not know, I have been working (ALOT) over the 5 months putting together a Bone Marrow Disease fundraiser to benefit research by Dr. Maciejewski directly.

We will be having the benefit on October 17th at The House of Blues in Cleveland. During the event, there will be a DVD loop running all night long. I am looking for pictures (there will be no sound-or you won't be able to hear it)
of people - all ages- to insert on the DVD with a 2-3 line blurb about you (just first name-maybe age etc...) what disease you have and current condition. I am trying to bring a very real awareness to those attending, as well as raise as much money as we can for research.

If you are interested and/or hae questions-please e-mail me at:

sherri_ffg@msn.com

You can also find out more about the event at:

www.makeithappen4bmd.org

Thanks-Sherri

P.S. If you know anyone in the Cleveland area thatmight be interested in attending, please let me know!
__________________
Sherri

Mom to Annalyse, 6 years old
SAA 8/05 PNH 9/05 ATG 9/05 w/Cyclo
Currently in partial remission
Reply With Quote
  #2  
Old Fri Sep 26, 2008, 01:45 PM
Ruth Cuadra Ruth Cuadra is offline
Administrator
 
Join Date: Jul 2006
Location: Los Angeles, California
Posts: 616
Hi, Sherrie.

I've sent a photo and a few sentences to the email address you provided. Thank you for what you're doing for Dr. Maciejewski, The Cleveland Clinic and, ultimately, all of us.

Regards,
Ruth
__________________
Diagnosed AA 10/96, MDS/RA 6/98, MUD/BMT 10/6/98
Reply With Quote
  #3  
Old Sat Sep 27, 2008, 02:26 PM
Sherri Sherri is offline
Member
 
Join Date: Mar 2006
Location: Cleveland, Ohio
Posts: 22
Thank you Ruth! I got your picture - it looks great!!!
__________________
Sherri

Mom to Annalyse, 6 years old
SAA 8/05 PNH 9/05 ATG 9/05 w/Cyclo
Currently in partial remission
Reply With Quote
  #4  
Old Tue Sep 30, 2008, 10:08 PM
LeslieAnn LeslieAnn is offline
Member
 
Join Date: Jul 2008
Location: Chicago, Illinois
Posts: 6
sent pic and info

Sherri:
I just sent a picture and my information to the email address you gave. Good luck with your fundraiser.
Leslie
__________________
Leslie, 53, diagnosed MDS July 2007, RAEB II, 20q and 13 q del, currently taking Revlimid.
Reply With Quote
  #5  
Old Thu Oct 9, 2008, 09:54 PM
Sherri Sherri is offline
Member
 
Join Date: Mar 2006
Location: Cleveland, Ohio
Posts: 22
Last chance for pictures!!! I have to have them by this Saturday!
Thanks to everyone who has sent them- I've gooten quite a few!
__________________
Sherri

Mom to Annalyse, 6 years old
SAA 8/05 PNH 9/05 ATG 9/05 w/Cyclo
Currently in partial remission
Reply With Quote
Reply


Thread Tools Search this Thread
Search this Thread:

Advanced Search

Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

vB code is On
Smilies are On
[IMG] code is On
HTML code is Off
Forum Jump


All times are GMT -4. The time now is 06:23 PM.


Powered by vBulletin® Version 3.6.7
Copyright ©2000 - 2024, Jelsoft Enterprises Ltd.
Forum sites may contain non-authoritative and unverified information.
Medical decisions should be made in consultation with qualified medical professionals.
Site contents exclusive of member posts Copyright © 2006-2020 Marrowforums.org