Home         Forums  

Go Back   Marrowforums > Treatments > Transplants
Register FAQ Search Today's Posts Mark Forums Read

Transplants Bone marrow and stem cell transplantation

Thread Tools Search this Thread
Old Sun Jan 12, 2020, 09:38 AM
bolotin bolotin is offline
Join Date: Jan 2020
Location: New York, NY
Posts: 2
white cells aren't growing

I was diagnosed with Myelodysplastic Syndrome several years ago and was stable for a couple of years. In June of 2019, I was hospitalized and got a bone marrow transplant from an unknown donor. My white cells were the cancerous ones. I was told that, after 6 months, the white cells should be fully growing. However, my "new" white cells never started growing on their own, and it's been 6 months. The doctors don't know why. I am curious if anyone else has/had a similar problem and what's being done about it.
Reply With Quote
Old Mon Jan 13, 2020, 11:15 AM
Richard Lin Richard Lin is offline
Join Date: Jan 2020
Location: New York, New York, USA
Posts: 2
Sorry to hear that - sometimes it could be due to GVHD, infection, or an immune-mediated process. You can ask your doctor whether a "stem cell boost" is needed.
Reply With Quote
Old Tue Jan 14, 2020, 12:25 AM
DanL DanL is offline
Join Date: Dec 2010
Location: Denver, CO
Posts: 584
have they been giving you any GCSF like neulasta or neupogen? I have yet to have fully normal levels of white cells consistently and I am 5 years post transplant and generally run under 3 total white count with little real impact to me.
MDS RCMD w/grade 2-3 fibrosis. Allo-MUD Feb 26, 2014. Relapsed August 2014. Free and clear of MDS since November 2014 after treatment with Vidaza and Rituxan. Experiencing autoimmune attack on CNS thought to be GVHD, some gut, skin and ocular cGVHD. Neuropathy over 80% of body.
Reply With Quote
Old Mon Jan 20, 2020, 04:03 AM
Cheryl C Cheryl C is offline
Join Date: Dec 2011
Location: Lake Macquarie, Australia
Posts: 838
Hi Bilotin - sorry I can't advise on that one except to say that I've lived with white cells down below 2.0 for years. They're currently 1.0 which is a slight improvement. There's a lot you can do to prevent infections.

Hi Dan - I just read your signature block. How are you feeling? 80% Peripheral neuropathy sounds very uncomfortable.

I just started Azacitidine today. No problem so far except that the injection sites are inflamed. Will see how I am in a week!
Dx MDS RAEB 10% blasts + hypogammaglobulinemia, Sep 2011. Jan 2012 BMB - blasts down to 2% w/out treatment so BMT cancelled. Re-diagnosis RCMD. Watch and wait from Feb 2012. IVIg 5-weekly. New diagnosis Oct 2019 AML 23% blasts in marrow, 10% blasts in peripheral blood.
Reply With Quote

Thread Tools Search this Thread
Search this Thread:

Advanced Search

Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

vB code is On
Smilies are On
[IMG] code is On
HTML code is Off
Forum Jump

Similar Threads
Thread Thread Starter Forum Replies Last Post
PNH in white vs. red blood cells curlygirl PNH 3 Sat Nov 9, 2013 09:12 AM

All times are GMT -4. The time now is 01:18 PM.

Powered by vBulletin® Version 3.6.7
Copyright ©2000 - 2020, Jelsoft Enterprises Ltd.
Forum sites may contain non-authoritative and unverified information.
Medical decisions should be made in consultation with qualified medical professionals.
Site contents exclusive of member posts Copyright 2006-2020 Marrowforums.org