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Old Thu Dec 24, 2015, 05:48 AM
PaulS PaulS is offline
Join Date: Sep 2014
Location: New York
Posts: 247
Day 104 Update

Hi all -

i got my 90 day BMB results - donor 99+% - no disease or cytogenetic abnormalities - everyone pretty happy.

My platelets and Hgb remain problematic and I needed transfusions of both yesterday. WBC and ANC normal - Dr. thinks the GVHD may be consuming platelets and it otherwise may just take a long time for me for whatever reasons -

Retuxan seems to be working and my GVHD has improved markedly - going from Grade 3 to Grade 1 and fading - their tapering my prednisone, which I'm very happy about.

All in all feeling pretty good - and very grateful for my donor, health care team, family and friends - also thankful for all the support and great advice I've received from this forum.

Merry Christmas everyone!!

Lower risk MDS diagnosed 2012. Recurring skin nodules treated with prednisone, otherwise watch and wait. HG dropped from 11.5 to 8.7. Kept going down to 5. Vidaza didn't work. BMT from MUD on September 10 2015
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Old Thu Dec 24, 2015, 02:21 PM
Neil Cuadra Neil Cuadra is offline
Join Date: Jul 2006
Location: Los Angeles, California
Posts: 2,520
A great way to end the year, Paul!

It's tricky tapering prednisone at just the right pace. I hope a slow and steady decrease will go well, and help your counts rise.
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Old Fri Dec 25, 2015, 10:20 PM
Cheryl C Cheryl C is offline
Join Date: Dec 2011
Location: Lake Macquarie, Australia
Posts: 843
Excellent news Paul!
Dx MDS RAEB 10% blasts + hypogammaglobulinemia, Sep 2011. Jan 2012 BMB - blasts down to 2% w/out treatment so BMT cancelled. Re-diagnosis RCMD. Watch and wait from Feb 2012. IVIg 5-weekly. New diagnosis Oct 2019 AML 23% blasts in marrow, 10% blasts in peripheral blood.
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Old Sat Dec 26, 2015, 10:43 PM
traceyn11 traceyn11 is offline
Join Date: Apr 2015
Location: Irvine, CA
Posts: 142
Fantastic news Paul! Glad you are feeling good!

Tracey, mom & wife,age 58, dx MDS RAEB-2 4/15, normal cytogenetics, Update: SCT cancelled. Blasts at 67%. New dx AML.
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