Home         Forums  

Go Back   Marrowforums > Treatments > Transplants
Register FAQ Search Today's Posts Mark Forums Read

Transplants Bone marrow and stem cell transplantation

Reply
 
Thread Tools Search this Thread
  #1  
Old Thu Dec 17, 2015, 08:31 PM
Data Data is offline
Member
 
Join Date: Sep 2014
Location: Florida
Posts: 245
Timeline for Stem Cell Transplant

My doctors making preparations for a stem cell transplant for me. On Dec 2, 2015 the stem cell transplant coordinator told me I had "lots of matches out there. We are requesting the confirmatory typing today on several donors." I know I have three days of tests to make sure I am healthy enough for the transplant and will have to see my doctor one more time before being admitted. What I was wondering was how fast this process works. I know it is the holidays and things probably grind to a halt but can some of you share we me how your timeline went once they started looking for donors and found one. Obviously I am just looking for a rough idea - not exact time frames.

Thanks in advance


Data
__________________
Prostate Cancer: Treated in early 2013 with HDR Brachytherapy. MDS-RCMD: Oct 2014. Biopsies: 46,XY,t(7;18)[2]: 46,XY,del(7)( q22)[3]: 45,XY,-7[6]: 45,XY,-7[10]: 45,XY,-7[13]. HSCT in April 2016.

Last edited by Data : Fri Dec 18, 2015 at 01:38 PM. Reason: spelling
Reply With Quote
  #2  
Old Thu Dec 17, 2015, 09:03 PM
Neil Cuadra Neil Cuadra is offline
Owner
 
Join Date: Jul 2006
Location: Los Angeles, California
Posts: 2,520
Data,

Once a donor is identified, they must be contacted, they must agree to be tested, they must schedule and pass the tests, then agree again to donate. My wife's donor had moved to another state since signing up for the donor registry, so we were lucky that the National Marrow Donor Program reached relatives who could provide the new contact information.

Assuming you've passed your own tests, they can schedule the donation and transplant at almost any time. Our doctor said "the sooner the better" and we had no other delays.

Although they may have identified many potential donors for you, that doesn't mean that they'll all be asked, and that the first one that comes through the process will be your donor. I suspect that they contact them serially, or only a couple at a time, due to the overhead and the cost of testing. They'd start with potential donors that have the best HLA match, and perhaps select them by other factors like age and male vs. female-with-no-children vs. female-with-children.

Getting in touch with potential donors may be harder during the holidays, when so many families travel, but if I heard that somebody's life depended on me being available, I'd be there in a minute. I would never say "I'm busy - can it wait a month?" I hope other people wouldn't either.

It's great to have many potential donors, but there's only one of you, so I really hope you are found to have "all systems go".
Reply With Quote
  #3  
Old Thu Dec 17, 2015, 09:23 PM
bailie bailie is offline
Member
 
Join Date: Dec 2013
Location: McMinnville,OR
Posts: 825
That is great that there are "lots of donors". I had one match out of the 23 million (approx.) on the donor list. It went relatively quickly for me, about a month. My match was a 20 yr. old male from Germany.
__________________
age 70, dx RAEB-2 on 11-26-2013 w/11% blasts. 8 cycles Vidaza 3w/Revlimid. SCT 8/15/2014, relapsed@Day+210 (AML). Now(SCT-Day+1005). Prepping w/ 10 days Dacogen for DLI on 6/9/2017.
Reply With Quote
  #4  
Old Fri Dec 18, 2015, 11:17 AM
vickij vickij is offline
Member
 
Join Date: Apr 2013
Location: Connersville, Indiana
Posts: 117
Data

It is great that you have many matches. I think I only had 1 match. he was a 10/10 match, European male was all I was told. I don't know if he was only one or if they stop looking after they find one that will donate. They didn't give me much info on him. I was just so happy that they found a match so soon. It didn't take long after he agreed to donate, he had tests and I had tests. I think it only took about 4-6 weeks. Best of luck to you.
__________________
62 yr old female. dx AA 3/12.treated with ATG 4/12.dx MDS 4/13. MUD BMT on June 25th,2013
Reply With Quote
  #5  
Old Fri Dec 18, 2015, 06:55 PM
rar rar is offline
Member
 
Join Date: Mar 2014
Location: colorado
Posts: 215
I had 3 matches out of 6 siblings. I was 5 months from diagnosis to transplant. It was 2 months from diagnosis to getting me on a clinical trial, another 2 months on the trial that reduced blasts from 11% to 2%. It was a couple weeks from choosing donor to transplant. Everything went smoothly. If you have speed bumps it will be slower.
Reply With Quote
  #6  
Old Fri Dec 18, 2015, 06:58 PM
Data Data is offline
Member
 
Join Date: Sep 2014
Location: Florida
Posts: 245
Everyone, Thanks!!

Thanks for the replies. I am just inpatient to get this process started.

Thanks again for all your comments.

Best wishes to all of you in your individual journeys!!

Data
__________________
Prostate Cancer: Treated in early 2013 with HDR Brachytherapy. MDS-RCMD: Oct 2014. Biopsies: 46,XY,t(7;18)[2]: 46,XY,del(7)( q22)[3]: 45,XY,-7[6]: 45,XY,-7[10]: 45,XY,-7[13]. HSCT in April 2016.
Reply With Quote
Reply


Thread Tools Search this Thread
Search this Thread:

Advanced Search

Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

vB code is On
Smilies are On
[IMG] code is On
HTML code is Off
Forum Jump

Similar Threads
Thread Thread Starter Forum Replies Last Post
problem swallowing solid food after stem cell transplant dazbella Questions and Answers 3 Tue Sep 1, 2015 04:56 PM
1 year birthday of a second stem cell transplant. pbaxter Transplants 2 Tue Nov 1, 2011 02:36 PM
Stem Cell Transplant katherineann59 Transplants 2 Mon Jun 29, 2009 09:05 PM
NMDP Provides Transplant Information Marrowforums Transplants 1 Tue May 8, 2007 04:00 AM


All times are GMT -4. The time now is 12:28 PM.


Powered by vBulletin® Version 3.6.7
Copyright ©2000 - 2021, Jelsoft Enterprises Ltd.
Forum sites may contain non-authoritative and unverified information.
Medical decisions should be made in consultation with qualified medical professionals.
Site contents exclusive of member posts Copyright 2006-2020 Marrowforums.org