Home         Forums  

Go Back   Marrowforums > Treatments > Drugs and Drug Treatments
Register FAQ Search Today's Posts Mark Forums Read

Drugs and Drug Treatments ATG, Cyclosporine, Revlimid, Vidaza, Dacogen, ...

Thread Tools Search this Thread
Old Fri Aug 8, 2008, 02:25 PM
Gaygee Gaygee is offline
Join Date: Aug 2008
Location: Palm Springs, CA
Posts: 1
Exclamation Side Effects of Revlimid

I am 74 and fairly new to MDS. Procrit did not work and I am now two transfusions down (plus two years ago). Doctor suggesting Revlimid. Is it not a form of chemo? What hapens to my healty white cells and platelets. I told him NO but he wants me to get a second opinion. Can anyone offer some info.
Thanks. Gaygee
Reply With Quote
Old Sat Aug 9, 2008, 05:48 AM
Birgitta-A Birgitta-A is offline
Join Date: Oct 2007
Location: Stockholm, Sweden
Posts: 1,918

Hi Gaygee,
The results of treatment with Revlimid (lenalidomide) are positive for many MDS patients especially for patients with the chromosome aberration 5q deletion. Here is a link about treatment results: Lenalidomide: a brief review of its therapeutic potential in myelodysplastic syndromes.

It is common with adverse reactions like low red and white blood cells and low platelets initially: Understanding Side Effects.

Kind regards
69 yo, dx MDS interm-1 May 2006, transfusion dependent, Desferal for iron overload, Neupogen for low white blood cells.
Reply With Quote
Old Sat Aug 9, 2008, 03:48 PM
Ruth Cuadra Ruth Cuadra is offline
Join Date: Jul 2006
Location: Los Angeles, California
Posts: 612
Originally Posted by Gaygee View Post
Doctor suggesting Revlimid. Is it not a form of chemo? What hapens to my healty white cells and platelets.
Hi, Gaygee.

Yes, in fact, Revlimid (and the other drugs for treating MDS such as Vidaza and Dacogen) are a form of chemotherapy. Most of us think of "chemotherapy" as it is portrayed in the movies and on TV where the patient is in the hospital, hooked up to numerous machines, and receiving drugs through a constant drip. This is still true for some diseases and with some drugs, but with MDS we are very fortunate now to have drugs like Revlimid that can be taken on an out-patient basis. You may experience the same kinds of side effects with Revlimid (e.g., low blood counts, nausea, fatigue) as you would from an in-hospital chemo because the drug is doing the same kind of work. It is killing off bad cells in an attempt to let healthy cells re-grow. But in this process healthy cells are killed as well, which is what makes you feel worse before you get better.

Anyone who is dealing with a serious disease like MDS should consider getting a second--or even a third--opinion about their diagnosis and possible treatment options. I give your doctor credit for encouraging you to consult with another doctor to validate the treatment that he is recommending.

Ruth Cuadra
Diagnosed AA 10/96, MDS/RA 6/98, MUD/BMT 10/6/98
Reply With Quote

Thread Tools Search this Thread
Search this Thread:

Advanced Search

Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

vB code is On
Smilies are On
[IMG] code is On
HTML code is Off
Forum Jump

Similar Threads
Thread Thread Starter Forum Replies Last Post
Revlimid and side effects Mary Lee Drugs and Drug Treatments 4 Mon Sep 1, 2014 05:01 PM
Cyclosporine side effects BobbyJD Drugs and Drug Treatments 5 Tue Jun 24, 2014 01:48 AM
Long Term Effects of Revlimid? FZ_MM_free Drugs and Drug Treatments 0 Mon Jun 6, 2011 01:43 PM
Revlimid side effects Rosemary Drugs and Drug Treatments 4 Mon Apr 25, 2011 12:05 PM
cyclosporine side effects SNichols Drugs and Drug Treatments 11 Wed Oct 20, 2010 01:43 PM

All times are GMT -4. The time now is 02:05 PM.

Powered by vBulletin® Version 3.6.7
Copyright ©2000 - 2021, Jelsoft Enterprises Ltd.
Forum sites may contain non-authoritative and unverified information.
Medical decisions should be made in consultation with qualified medical professionals.
Site contents exclusive of member posts Copyright 2006-2020 Marrowforums.org