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  #1  
Old Thu Dec 13, 2012, 09:15 AM
squirrellypoo squirrellypoo is offline
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I'm an AAMDS "Story of Hope"!

I don't know how many of you noticed, or made the connection, but I was featured in the December AAMDS newsletter as a "Story of Hope".

You can read it here

I never quite got around to writing a succinct version of my story here for everyone, so it's nice to have a version of it written out if people don't want to wade through my super-long, play-by-play account in the Transplants forum!
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36/F - 1984 SAA treated with ATG [complete remission until] Oct 08 - burst blood vessels in eyes and low platelets; Jan 09 - AA & hypo-MDS; July 09 - BMT (RIC MUD PSCT) July 10 - 10k for Anthony Nolan (1yr post BMT! 53:48) Sep 10 - Wedding! I've run 5 marathons now!! (PB 3:30!)
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  #2  
Old Thu Dec 13, 2012, 12:22 PM
Neil Cuadra Neil Cuadra is offline
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Congratulations, Melissa.

Your story definitely belongs among the Stories of Hope, to inform and inspire other patients, even although it had to omit so many details to turn years of ups and downs into a handful of paragraphs.

I'm surprised they didn't choose a finish-line photo.
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Old Thu Dec 13, 2012, 01:18 PM
squirrellypoo squirrellypoo is offline
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Quote:
Originally Posted by Neil Cuadra View Post
I'm surprised they didn't choose a finish-line photo.
It's because the story was written before the marathon, and the author just slotted in my finish time at the last minute before publication.

I've got a few photos from the Amsterdam marathon here if you'd like to see, though. I'm too cheap to spend the €€€€€ for the official race photos and videos so you'll have to trust me that I managed a sprint finish! And besides, my friends' photos from Km 26 and from the after party were much nicer anyway!
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36/F - 1984 SAA treated with ATG [complete remission until] Oct 08 - burst blood vessels in eyes and low platelets; Jan 09 - AA & hypo-MDS; July 09 - BMT (RIC MUD PSCT) July 10 - 10k for Anthony Nolan (1yr post BMT! 53:48) Sep 10 - Wedding! I've run 5 marathons now!! (PB 3:30!)
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Old Mon Dec 17, 2012, 02:09 PM
mausmish mausmish is offline
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Congratulations, Melissa! Yours is a story to inspire hope in anyone, anywhere!
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Karen, age 62, dx MDS RAEB-2 1/8/10: pancytopenia WBC 2.7k/Hgb 7.4/Hct 22.1/Plt 19k; complex cytogenetics -3,del(5)(q14q33),-6,+8,+mar,17% blasts. MUD BMT Johns Hopkins 11/30/10. Dx tongue cancer 8/31/12. ok now. blog mausmarrow.com
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  #5  
Old Mon Dec 17, 2012, 04:00 PM
Birgitta-A Birgitta-A is offline
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Hope

A wonderful story Melissa!
Kind regards
Birgitta-A
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