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Old Sun Apr 19, 2009, 07:33 PM
Mucka Mucka is offline
Join Date: Apr 2009
Location: Ireland
Posts: 2
MDS in IRELAND, Europe

I would love to talk with anybody in Ireland who has MDS. Perhaps we might be able to help each other.
RARS dx 1993; RBC transfusions every 2-3 weeks; Erythropoeitin tried x2 - no change; Ferritin 3500 - Exjade 1500 daily; Just completed 5 cycles Vidaza - no change
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Old Mon Apr 20, 2009, 02:04 PM
Neil Cuadra Neil Cuadra is offline
Join Date: Jul 2006
Location: Los Angeles, California
Posts: 2,498
I know how hard it can be to find other patients with a rare disease.

Might your treatment center, doctor, or a hospital be able to connect you with other MDS patients?
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