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MDS Myelodysplastic syndromes

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  #1  
Old Thu Sep 29, 2011, 09:14 PM
Lifeguard Lifeguard is offline
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Low Albumin levels

Over the last five months my Albumin count has dropped from very healthy to below normal levels and the specialist has now requested a 24hr urine test to check if protein is leaking from the kidneys. Just wondering if anyone out there has had this happen whilst taking Revlimid (or any other drug) and what was the next course of action if the test confirms the above.

With thanks
Rachael
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Diagnosed MDS Del 5q October 2007, blood transfusions 2010, commenced Revlimid 2010. Transfusion independent.
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Old Thu Sep 29, 2011, 09:42 PM
Chirley Chirley is offline
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Hi, I have this problem too but it only started after I had Vidaza. The only treatment I'm having at the moment is copper infusions. 24hr urinary protein showed high excretion but we are not investigating or doing anything else at this stage.

Regards
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Copper deficiency bone marrow failure (MDS RAEB 1), neuromyelopathy.
FISH reported normal cytogenetics but gene testing showed
Xq 8.21 mutation
Xq19.36 mutation
Xq21.40. mutation
1p36. Mutation
15q11.2 deletion
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Old Tue Oct 4, 2011, 06:44 PM
Lifeguard Lifeguard is offline
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Thanks Chirley.
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Diagnosed MDS Del 5q October 2007, blood transfusions 2010, commenced Revlimid 2010. Transfusion independent.
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