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  #1  
Old Sat Oct 29, 2011, 07:43 PM
Jennifer M Jennifer M is offline
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Join Date: Oct 2011
Location: Florida (Panhandle, Gulf Coast)
Posts: 5
Question BP Oil Spill: Possible cause of AA & PNH??!!

Hello Everyone!

I'm a Newbie & my Wonderful & Very Brave Husband Chris was diagonised July 2011 w/Moderate AA & PNH. Because my Husband has Always been a "Health Nut" his entire life & has never been exposed to any known toxins that can cause these horrible disease(s), we cannnot help but wonder the timing of the BP Oil Spill Disaster & The Dangerous Dispersants used during the ongoing spill & the aftermath (By air & water). We live ON the Gulf Coast & we were both actually swimming in The Gulf of Mexico when the very first sightings of tar balls came ashore. The timing of his downward spriral of health to the final diagnosis just seems "To Fit" EXACTLY! His blood counts were otherwise normal before (from routine physicals & etc....). Does anyone from the Gulf Coast have a new diagnosis of AA, PNH or other Bone Marrow Failure diseases since the BP Oil Spill?

No, I am not an atty. Just a conerned wife that wants answers!

Peace, Love & Health to ALL!!
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Jennifer: Loving & Hopeful Wife of Chris age 45. Diagnosed w/Moderate AA & PNH July 2011. "Watch & Wait"/Supportive Care.
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  #2  
Old Sun Oct 30, 2011, 12:19 AM
mscrzy1 mscrzy1 is offline
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Join Date: Jan 2011
Location: California
Posts: 103
Sorry, I can't help you. From what I understand most cases of AA are idiopathic, but I did want to respond to forward the link for the AA conference online webinar where they discuss people who get AA and why.

http://live.blueskybroadcast.com/bsb...PIC-WHATWEKNOW
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Angie

36 yr. old, dx SAA in Jan 1996, treated with ATG in Mar. 1996, off cyclosporine Sept. 1996, last blood transfusion in Aug. 1997, slow decline in counts again November 2010, AA and current count decline thought to be caused by lupus, currently taking 400mg Plaquinil
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  #3  
Old Sun Oct 30, 2011, 12:42 AM
Jennifer M Jennifer M is offline
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Join Date: Oct 2011
Location: Florida (Panhandle, Gulf Coast)
Posts: 5
Talking

Hi Angie,

Thanks so much for your reply & advice! It really helps when you feel that you are not alone! It means soooo much!

We have been informed that most cases are idiopathic. Yet, we just can't help but wonder the timing of the BP Oil Disaster & my husband's diagnosis.

I think I have seen the webinar you speak of. We will watch it again.

Sometimes we just are grasping for answers & want to know if others have experienced the same fate in our area with these unique circumstances. So, anyone from the Gulf Coast with a recently diagnosis of any form of Bone Marrow Failure, please make contact for support!

Peace & Recovery to ALL!
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Jennifer: Loving & Hopeful Wife of Chris age 45. Diagnosed w/Moderate AA & PNH July 2011. "Watch & Wait"/Supportive Care.
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  #4  
Old Sun Oct 30, 2011, 02:35 PM
mscrzy1 mscrzy1 is offline
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Join Date: Jan 2011
Location: California
Posts: 103
Yes, I completely understand where you are coming from. I remember after being originally dx, I was grasping for answers as well. At the time, I was working cleaning musical instruments for a local instrument store. They didn't provide gloves and I was too young and dumb to know any better at the time. We had the cleaning chemicals sent off for testing and everything, but still weren't able to directly determine that it was what caused my AA. For now, I've come to the conclusion that the chemicals may have weakened my marrow and I may have caught some random virus that just "broke the camel's back". I wish you luck in your search!!!
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Angie

36 yr. old, dx SAA in Jan 1996, treated with ATG in Mar. 1996, off cyclosporine Sept. 1996, last blood transfusion in Aug. 1997, slow decline in counts again November 2010, AA and current count decline thought to be caused by lupus, currently taking 400mg Plaquinil
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  #5  
Old Sun Oct 30, 2011, 03:19 PM
mausmish mausmish is offline
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Join Date: Mar 2010
Location: Maryland
Posts: 453
Before we moved into our current home 8-1/2 years ago, the radon level tested about 100x the safe level. It was completely remediated before we moved in. When I was dx with MDS two years ago, tht was the first thing I thought of. We retested the house and it was still fine. I guess we'll never know the cause of my disease. I think it's human nature to want/need to know the why's.
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Karen, age 62, dx MDS RAEB-2 1/8/10: pancytopenia WBC 2.7k/Hgb 7.4/Hct 22.1/Plt 19k; complex cytogenetics -3,del(5)(q14q33),-6,+8,+mar,17% blasts. MUD BMT Johns Hopkins 11/30/10. Dx tongue cancer 8/31/12. ok now. blog mausmarrow.com
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  #6  
Old Mon Oct 31, 2011, 01:51 PM
Dick S Dick S is offline
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Join Date: Jan 2008
Location: Florida
Posts: 189
Sometimes, probably most of the time, we never find out what caused our disease, we are just unlucky and get it. Now that I've got it, it's totally unimportant to me how, there's nothing I can do about it now. I'm pretty sure mine just came from plain old old age when the marrow gets smaller and smaller, tireder and tireder.
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Dick S, diagnosed Feb. 2008 with MDS. Last BMB April 2016. New diagnosis is CMML stage 1.
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