Home         Forums  

Go Back   Marrowforums > Bone Marrow Failure Diseases > News and Events
Register FAQ Search Today's Posts Mark Forums Read

News and Events News related to bone marrow failure diseases

Reply
 
Thread Tools Search this Thread
  #1  
Old Sun Jul 19, 2009, 09:36 PM
Marrowforums Marrowforums is offline
Marrowforums.org
 
Join Date: Jul 2006
Posts: 695
Marrowforums Owners Receive Leadership Award

On July 12, 2009, Ruth and Neil Cuadra received the annual Leadership in Service award from the Aplastic Anemia & MDS International Foundation, in recognition of their volunteer work on behalf of the AA, MDS, and PNH patient community and in particular for creating and running Marrowforums.

The award was presented by Neil Horikoshi, chairman of the Foundation's Board of Directors, at an Awards Luncheon at the AA&MDSIF's annual Patient & Family Conference in Indianapolis.

In accepting the award, Ruth noted the origins of Marrowforums as successor to the AA-MDS-TALK email listserv that was run by Vince Wessling from 1996 to 2006. Neil explained that supporting the patient community is Ruth's and his way of giving something back for the support they received from other patients and caregivers during Ruth's treatment for AA and MDS and subsequent bone marrow transplant.

The value of Marrowforums stems from the participation of patients and their family members and caregivers. Many new members come to Marrowforums looking for answers and suggestions from their peers, and after finding support and friendship begin to share what they've learned and help others. Ruth and Neil thank all forum members for their contributions to this community.



Ruth and Neil Cuadra
Leadership in Service
2009
Aplastic Anemia & MDS
International Foundation
Reply With Quote
  #2  
Old Mon Jul 20, 2009, 11:12 AM
debbie debbie is offline
Member
 
Join Date: May 2008
Location: ny, ny
Posts: 10
congratualtions to both ruth and neil on this well-deserved award. their contribution to those of us affected with these blood diseases is immeasurable.

this website was invaluable to me during my husband's illness. his doctor, in his kindness, always presented an optimistic view to us. thankfully, my husband was never aware of the direction in which it could turn. i did not question the doctor because i did not want my husband to hear answers which might affect his mental attitude.

only through this informative site was i able to monitor his treatment and gain insight to its possible effectiveness. i was able to anticipate side effects and reactions. there is no way i could have done this alone and i will always be thankful to everyone here for their contribution.

i will continue to follow the marrowform posts and, hopefully, will one day read of the cures we are all praying for.

again, thank you ruth and neil. i cannot truly express how important you have been to me.
Reply With Quote
  #3  
Old Mon Jul 20, 2009, 11:24 AM
Birgitta-A Birgitta-A is offline
Member
 
Join Date: Oct 2007
Location: Stockholm, Sweden
Posts: 1,919
Thumbs up Reward

Good that you both, Ruth and Neil, got the well deserved award for this wonderful forum!
Kind regards
Birgitta-A
Reply With Quote
  #4  
Old Mon Jul 20, 2009, 02:13 PM
Hawaii Bill Hawaii Bill is offline
Member
 
Join Date: Jun 2008
Location: Waikele Hawaii
Posts: 100
Congratulations!

A well-deserved award for you both.

This website is an extremely valuable resource for all of us.

Thank you for everything you have done.
__________________
Male, 56, dx Nov2006 VSAA (BMA:0%). Responded to ATG/CsA/Prednisone/Neupogen Dec 2006, but relapsed in June 2007. Counts are responding to using CsA 200mg bid alone since Jun 2008. Last PRBC tx: Jul 2008.
Reply With Quote
  #5  
Old Mon Jul 20, 2009, 07:38 PM
JEZ JEZ is offline
Member
 
Join Date: Apr 2009
Location: Birmingham, AL
Posts: 68
I wondered how you both got sooooo smart. You both have a real knack for taking the most complicated information and making it understandable. Thank you for your commitment to all of us who soldier on with these marrow diseases! And your own struggles give us all hope.

JEZ
__________________
JEZ, 50s, diagnosed AA Dec 2006, ATG one time, serum sickness resolved / took cyclosporine (Neoral) with delayed response but now with good labs/ recent kidney toxicity, so off of cyclosporine now and trying generic Imuran
Reply With Quote
  #6  
Old Wed Jul 22, 2009, 07:16 PM
Steven Steven is offline
Member
 
Join Date: Jul 2009
Location: New York
Posts: 16
I'm grateful this site exists, and glad you won this award! The information provided here is useful to so many people.
Reply With Quote
  #7  
Old Sat Aug 1, 2009, 11:28 PM
michelle_lapuz michelle_lapuz is offline
Member
 
Join Date: Nov 2007
Posts: 28
thank you thank you thank you!!! I don't know what I would do without this website for support and information....I am extremely grateful.

Michelle
Reply With Quote
  #8  
Old Sun Aug 2, 2009, 10:51 AM
Beth I Beth I is offline
Member
 
Join Date: Apr 2008
Location: Farmington, CT
Posts: 22
Truly well-deserved

I join everyone else in my appreciation for all that you both have accomplished with this site and especially the forum. Having a place to go to get questions answered, solicit reality checks and just feel that you aren't alone is worth more than words can say.

Many many thanks,

Beth
Reply With Quote
Reply


Thread Tools Search this Thread
Search this Thread:

Advanced Search

Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

vB code is On
Smilies are On
[IMG] code is On
HTML code is Off
Forum Jump


All times are GMT -4. The time now is 08:32 AM.


Powered by vBulletin® Version 3.6.7
Copyright ©2000 - 2017, Jelsoft Enterprises Ltd.
Forum sites may contain non-authoritative and unverified information.
Medical decisions should be made in consultation with qualified medical professionals.
Site contents exclusive of member posts Copyright 2006-2016 Marrowforums.org