Home         Forums  

Go Back   Marrowforums > Community > Tell Your Story
Register FAQ Search Today's Posts Mark Forums Read

Tell Your Story Say hello or share your experiences

Reply
 
Thread Tools Search this Thread
  #1  
Old Sat Jun 2, 2007, 07:28 PM
Anne Anne is offline
Member
 
Join Date: Jun 2007
Posts: 5
looking for a donnor

I have MDS. I turned 70 this year and because I appear to be strong enough at this point City of Hope Doctors have agreed to look for a donnor for me and implement a transplant on my bone marrow. The problem is finding a donnor. My children were not a match--so we're still looking. I am on my third Vidaza treatment and haven't had a transfusion in 31 days. I want to be positive and think that things will work out. I also pray.
__________________
Anne, diagnosed MDS 12/06; treated with Vidaza, procrit, transfusions
Reply With Quote
  #2  
Old Sun Jun 3, 2007, 12:25 AM
Ruth Cuadra Ruth Cuadra is offline
Administrator
 
Join Date: Jul 2006
Location: Los Angeles, California
Posts: 616
Hi, Anne.

Welcome to Marrowforums. We're always sorry when someone has to join us because of bone marrow disease, but I think you'll find a very supportive community here. If you ask a question, someone in the group is bound to know the answer, have a related experience to share, or know where to go to get the information you need.

I'm so impressed that the doctors think you are a good candidate for bone marrow transplant at age 70. When I was diagnosed in 1998, I felt like I was already too old for a transplant at 43 but I felt very lucky to be at City of Hope. When they find a donor for you, it sounds like you'll be ready to benefit from all the improvements in transplant technology and nursing care that have taken place since the "old" days. In the meantime, you seem to be getting a good response to Vidaza. Have you have many side effects?

Regards,
Ruth Cuadra
__________________
Diagnosed AA 10/96, MDS/RA 6/98, MUD/BMT 10/6/98
Reply With Quote
  #3  
Old Mon Jun 4, 2007, 11:16 PM
Anne Anne is offline
Member
 
Join Date: Jun 2007
Posts: 5
Smile My vidaza side effects

The first day of the first set I took a compazine for nausea. I had the vidaza shot around 10 a.m. and the compazine around 10:30. By 4 pm I thought I would be ok. I had been told that compazine helped most people if they got sick. However, if it did not work that Zofran would help. The doctor gave a couple samples pills of Zofran (just in case). Well I became very ill around 5 pm and vomitted many times. I took the Zofran and within about what seemed to the longest time, my nausea finally stopped. The next day, when I went for my next shots, I told the nurse about the nausea. They gave me a Zofran prescription which I now take faithfully each day that I get a Vidaza treatment. They said that compazine addressed nausea on one part of the brain and Zofran on another part. Well!! it did not work for that side of my brain. The other side effects I had on the first set of shots were: fatigue, lack of energy. I was also very depressed, but I don't know if taking the treatment or knowing about my condition caused that. I also had extreme constipation. The doctor tells me that it is caused by the Zofran. I finished my third treatment set last week and seems that the side effects are dimming.
Thanks for having created this site. I really really appreciated
__________________
Anne, diagnosed MDS 12/06; treated with Vidaza, procrit, transfusions
Reply With Quote
Reply


Thread Tools Search this Thread
Search this Thread:

Advanced Search

Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

vB code is On
Smilies are On
[IMG] code is On
HTML code is Off
Forum Jump


All times are GMT -4. The time now is 08:29 AM.


Powered by vBulletin® Version 3.6.7
Copyright ©2000 - 2024, Jelsoft Enterprises Ltd.
Forum sites may contain non-authoritative and unverified information.
Medical decisions should be made in consultation with qualified medical professionals.
Site contents exclusive of member posts Copyright © 2006-2020 Marrowforums.org