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  #1  
Old Sun Feb 13, 2011, 12:06 PM
SNichols SNichols is offline
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Join Date: Jul 2010
Location: Hereford, AZ
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Talking I am normal
Howdy,
I got some great new on Friday. My doctors says my blood levels are normal. On the low side of normal but normal. I asked if I was cured and he laughed kind of. I am going to be weaned from cyclosprine.

God is Good!

Suzie5.6 56 dian June 2010, ATG July 2010
wbc 3.5
rbc3.80
hemo 12.7
plate 133
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  #2  
Old Sun Feb 13, 2011, 12:48 PM
Dick S Dick S is offline
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Join Date: Jan 2008
Location: Florida
Posts: 189
Hey, great news. Keep up the good work!
What is "normal" anyway? The only "normal" I have ever found was on a clothes dryer.
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Dick S, diagnosed Feb. 2008 with MDS. Last BMB April 2016. New diagnosis is CMML stage 1.
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  #3  
Old Sun Feb 13, 2011, 01:27 PM
Neil Cuadra Neil Cuadra is offline
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Join Date: Jul 2006
Location: Los Angeles, California
Posts: 2,556
Going from SAA to normal blood counts is cause for celebration. Congratulations, Suzie!

You've had your share of side effects from ATG, cyclosporine, and prednisone, so it's great to hear that it'll all be behind you soon!
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  #4  
Old Sun Feb 13, 2011, 11:55 PM
lindy lindy is offline
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Join Date: Nov 2010
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Congrats Suzie, great to hear you're normal!
Good encouragement for the start of a new year.
Best wishes.
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Lindy 56, low platelets, thrombocytopenia dx 2009, in watch & wait mode.
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  #5  
Old Mon Feb 14, 2011, 03:55 PM
Lisa V Lisa V is offline
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Join Date: Aug 2006
Location: Waimanalo, Hawaii
Posts: 401
Congratulations, Suzie! Technically, you're in remission rather than "cured", but remission is good. Long may it last!
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-Lisa, husband Ken age 60 dx SAA 7/04, dx hypo MDS 1/06 w/finding of trisomy 8; 2 ATGs, partial remission, still using cyclosporine
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  #6  
Old Mon Feb 14, 2011, 07:28 PM
susansr susansr is offline
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Join Date: Feb 2010
Location: Boston, Massachusetts
Posts: 49
Congrats, Suzie 5.6
What fantastic news. great numbers. lucky!! Its so nice to read about success.
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  #7  
Old Tue Feb 15, 2011, 12:32 AM
Gloria J Gloria J is offline
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Join Date: Sep 2009
Location: New Jersey
Posts: 53
My congratulations, too
Congratulations, Susie!

I think all of us on this site have learned new definitions for the word 'normal'!

Always good to hear another ATG success story, and keep up the good counts,

Gloria
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Gloria, early 50s, dx SAA Summer 2007, Pred July 07, Rituxan Aug 07, dx PNH Feb 2008, ATG Apr 08, began Soliris 5/31/11
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  #8  
Old Tue Feb 15, 2011, 04:44 AM
Ryan Jay Ryan Jay is offline
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Join Date: Aug 2010
Location: Massachusetts
Posts: 106
Good work!!!
You go!

I'm about a month behind you and I'm getting up there too. Seems like a bunch of us had ATG last summer. Gotta update my info at the bottom of the screen.

In a related question. Is there any way out of the "victory bone marrow biopsy?" Or do we just have to suck it up?
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Ryan Jay: 38-yo, dx SAA: 7/25/10, ATG: 8/10/10. CR with counts still rising. HGB: 13, Plt: 137 WBC 5.1 ANC
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  #9  
Old Wed Feb 16, 2011, 02:44 AM
Neil Cuadra Neil Cuadra is offline
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Join Date: Jul 2006
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Quote:
Originally Posted by Ryan Jay View Post
In a related question. Is there any way out of the "victory bone marrow biopsy?" Or do we just have to suck it up?
You can always refuse to undergo the biopsy, but it's important information and that's why the doctors do them. Maybe having stronger pain meds would be a better solution.
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