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Living with Illness Coping with disease, getting help, dealing with family, staying optimistic, quality of life, hospice care |
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#1
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Happy Thanksgiving!
I am grateful to be here to celebrate another Thanksgiving, and quite thankful for the friends I have found here on Marrowforums!
Wishing you all safe travels and a wonderful holiday! Cheri
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Cheri Age 54; dx Oct 2009 AML, induction chemo only;dx MDS July 2010,- PRBC transfusion dependent; Results BMB 8/4/11--- 6-8% blasts; Danazol 100 mg 3xday; quit Exjade/ GI distress; platelets holding 40's; Fluctuation in blasts in blood--Neupogen 3-4xweek; off Revlimid again! Procrit weekly |
#2
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Happy Thanksgiving from NC!
Hey Cheri!
I was just thinking it might be nice to put up a Thanksgiving greeting -- and wouldn't you know, you'd beat me to it! I hope you have a truly great one. And I hope all you BMFWs (Bone Marrow Failure Warriors) have a wonderful holiday, complete with family, friends, turkey, tofurkey, or whomever and whatever you chose for your celebration. Personally, I expect to use the outrageously pleasant weather here in NC to clean up the garden, rake a few leaves, and use those to start a new compost pile -- and to be grateful my ANC count is high enough to engage in such sport. Happy Thanksgiving to you all! Greg
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Greg, 59, dx MDS RCMD Int-1 03/10, 8+ & Dup1(q21q31). NIH Campath 11/2010. Non-responder. Tiny telomeres. TERT mutation. Danazol at NIH 12/11. TX independent 7/12. Pancreatitis 4/15. 15% blasts 4/16. DX RAEB-2. Beginning Vidaza to prep for MUD STC. Check out my blog at www.greghankins.com |
#3
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Cheri Age 54; dx Oct 2009 AML, induction chemo only;dx MDS July 2010,- PRBC transfusion dependent; Results BMB 8/4/11--- 6-8% blasts; Danazol 100 mg 3xday; quit Exjade/ GI distress; platelets holding 40's; Fluctuation in blasts in blood--Neupogen 3-4xweek; off Revlimid again! Procrit weekly |
#4
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Best wishes
"Back at you! And, like you, Greg, I'm enjoying this unusually warm weather in western NC. My husband and I have learned so much this year from your website! Also, the help from Birgitta and Neil, and others who are :continuing to do research! I'm also thankful for the drug "Dacogen" that continues to work for me!
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66 yr female;diag 6/09; MDS, unspecified, normal cytogenetics: blasts 10%; successful Dacogen;every 4th wk.; as of Aug.'12 changing to every 5th wk., stable at Hgb 12-14/platelets 200-300/wbc 2.-3. |
#5
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Remember - Cranberry sauce is red. Eat a lot of it. It can't hurt.
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Dallas, Texas - Age 81 - Pure Red Cell Aplasia began March 2005 - Tried IVIG - Then cyclosporine and prednisone. Then Danazol, was added. Then only Danazol . HG reached 16.3 March 2015. Taken off all meds. Facebook PRCA group https://www.facebook.com/groups/PureRedCellAplasia/ |
#6
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dr. said I could have a glass of wine. It'll be red! Happy Thanksgiving to all my new friends.
Donna
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f68 MDS; abmt 1/12. ABO mismatch 11 mos. (70) transf. Ferr 3-5k. 8 phlebot. AGVHD to CGVHD. skin,eyes. lungs as of 10/13. muscle weakness &osteo long term steroids.photopheresis 2x wk as of 3-15.pred 20 eod,acyclovir, mepron, voriconazole, pantropazole, lisinopril, montelukast, anoro, azithromycin. |
#7
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Happy Thanksgiving everyone! Last Thanksgiving I was in the hospital getting conditioning chemo for my BMT. One week from today will be my first rebirthday! I am very thankful to be here.
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Karen, age 62, dx MDS RAEB-2 1/8/10: pancytopenia WBC 2.7k/Hgb 7.4/Hct 22.1/Plt 19k; complex cytogenetics -3,del(5)(q14q33),-6,+8,+mar,17% blasts. MUD BMT Johns Hopkins 11/30/10. Dx tongue cancer 8/31/12. ok now. blog mausmarrow.com |
#8
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Happy Thanksgiving! I'm doing an expat feast at the weekend since we don't get the day off work here.
So I celebrated in my own way with a quick 5km run this morning instead! Thanksgiving 2008 I was too ill to barely walk anywhere, and Thanksgiving 2009 wasn't much better with my daily antifungal IVs, so I make sure I'm thankful for every healthy second I've got these days.
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36/F - 1984 SAA treated with ATG [complete remission until] Oct 08 - burst blood vessels in eyes and low platelets; Jan 09 - AA & hypo-MDS; July 09 - BMT (RIC MUD PSCT) July 10 - 10k for Anthony Nolan (1yr post BMT! 53:48) Sep 10 - Wedding! I've run 5 marathons now!! (PB 3:30!) |
#9
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Happy Thanksgiving to one and all my fellow Bone Marrow Failure survivors. We're still here aren't we?
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Dick S, diagnosed Feb. 2008 with MDS. Last BMB April 2016. New diagnosis is CMML stage 1. |
#10
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Thankful to be alive
Happy Thanksgiving & Holidays to all my marrow friends ). I'm happy every day I wake up and feel good enough to do anything, either go to work, or have a pj day on my day off! Best of luck to all of you & here's hoping 2012 will be a healthier one for all of us!
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Linda, 47 yo, married, mother of a teen, moderate AA w/ TERC mutation (2007 NIH), Pulmonary Fibrosis 2010, was on Danazol study (Aug 2011-2013 & restarted 9/14/15), last transfusion May 2011. On Promacta now. Needing a double lung and stem cell transplant. |
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