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  #1  
Old Wed Oct 7, 2009, 12:53 PM
AndreaTFTPTF AndreaTFTPTF is offline
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Join Date: Oct 2009
Posts: 6
Any SW Ohioans?
I'm between Cincinnati and Dayton
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  #2  
Old Mon Mar 1, 2010, 07:33 PM
rhs rhs is offline
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Join Date: Mar 2010
Location: beavercreek,oh
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sw Ohioans
I am from Dayton. Just got a confirmed dx from the Cleveland Clinic and are following with them for the time being. Where are you being seen? I may be looking for a Dr. closer.
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  #3  
Old Mon Mar 1, 2010, 10:26 PM
Zoe's Life Zoe's Life is offline
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Join Date: May 2007
Location: Logan, Ohio
Posts: 127
I am not southwest, but southeast. Just thought I would chime in and say hi. I am in Logan and go to The James. It is always nice to see some Ohioans.

Are you all sick of the snow? I think you all got the worst of it. We had enough though. This last snow is melting so quickly. Spring is truely on the way!! Happy Happy.

Zoe
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Diagnosed MDS-RA 5q- at age 47 (November 2006). Aranesp 2/07, good response.
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  #4  
Old Tue Mar 2, 2010, 05:08 AM
Chirley Chirley is offline
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Join Date: Oct 2007
Location: Logan City Australia
Posts: 1,100
Hi. just thought I'd pop in and say G'day. I'm from Logan too but Logan, Queensland Australia.
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Copper deficiency bone marrow failure (MDS RAEB 1), neuromyelopathy.
FISH reported normal cytogenetics but gene testing showed
Xq 8.21 mutation
Xq19.36 mutation
Xq21.40. mutation
1p36. Mutation
15q11.2 deletion
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  #5  
Old Wed Mar 3, 2010, 12:25 AM
Zoe's Life Zoe's Life is offline
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Join Date: May 2007
Location: Logan, Ohio
Posts: 127
Chirley, we are like neighbors on opposite sides of the world.
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Diagnosed MDS-RA 5q- at age 47 (November 2006). Aranesp 2/07, good response.
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  #6  
Old Mon Apr 12, 2010, 12:40 AM
Sherri Sherri is offline
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Join Date: Mar 2006
Location: Cleveland, Ohio
Posts: 22
Cleveland
Hi there-

My dgtr is being treated at The Cleveland Clinic...are you still being treated there? My dgtr is 10 now but was 5 when diagnosed.
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Sherri

Mom to Annalyse, 6 years old
SAA 8/05 PNH 9/05 ATG 9/05 w/Cyclo
Currently in partial remission
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  #7  
Old Fri May 28, 2010, 03:20 PM
Rachel Rachel is offline
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Join Date: May 2010
Location: Centerburg Ohio
Posts: 9
Newbie near Columbus
Hello!

I am just NE of Columbus and am new here.
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  #8  
Old Sat May 29, 2010, 12:18 AM
Zoe's Life Zoe's Life is offline
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Join Date: May 2007
Location: Logan, Ohio
Posts: 127
Rachel,

I don't really know where Centerburg is. My mom and her husband live up in Sunbury. I don't know north of Columbus any better than that.

Zoe
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Diagnosed MDS-RA 5q- at age 47 (November 2006). Aranesp 2/07, good response.
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  #9  
Old Sat May 29, 2010, 11:32 AM
Rachel Rachel is offline
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Join Date: May 2010
Location: Centerburg Ohio
Posts: 9
WOW!
Hey Zoe!

I am just 10 minutes N of Sunbury on 3! Small world!
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