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#1
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Hello
Just looking for someone in my area of Pennsylvania that has aplastic anemia with PNH...Looks like I am on my own..Nobody here...
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#2
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Yvonne,
Try posting in the forums at pnhdisease.org. There are a lot more PNH patients there than here, and AA+PNH is common. There are also a couple of Facebook groups for PNH. At pnhdisease.org -> PNH Forums -> PNH Daily Posts, you'll see a thread entitled "Where is everybody?" and in that tread are links to the Facebook groups. |
#3
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Thanks
Thanks for the information
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