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#1
Thu Jan 12, 2012, 05:35 AM
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One Year Birthday!
 Yesterday I celebrated my one year birthday since my transplant 1-11-11!! I have some gvh in my liver, skin and eyes but medication is keeping them all very tolerable. I have not had a bone marrow biopsy since pre transplant. The dr says he can tell by my blood that I am 100% donor and that my donor cells are working so good that it is unlikely there would be any bad one's left. It is anticipated that the gvh will go away and perhaps reappear on and off. I can handle all of that just fine. I didn't think I would survive the initial chemo rounds - and almost didn't. Keep your hopes up all and walk a close walk with God and he will comfort you. God is Great. Lori
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Lori, female age 53 dx MDS-RAEB-II 15% blasts 10-2010. Induc Chemo 10/14/10 for 7 days - results unacceptable so 5 additional days chemo. Complete Remission 12/10/10!! SCT 1-11-11 remission achieved!!! BMB 1-29-11 100% Donor!  cgvh eyes,skin (Caringbridge.org/visit/loripatrick)
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#2
Thu Jan 12, 2012, 10:35 AM
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Happy rebirthday!! May there be many more.
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36/F - 1984 SAA treated with ATG [complete remission until] Oct 08 - burst blood vessels in eyes and low platelets; Jan 09 - AA & hypo-MDS; July 09 - BMT (RIC MUD PSCT) July 10 - 10k for Anthony Nolan (1yr post BMT! 53:48) Sep 10 - Wedding! I've run 5 marathons now!! (PB 3:30!)
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#3
Thu Jan 12, 2012, 11:38 AM
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Happy rebirthday, Lori! That's wonderful news. Don't forget - the gvhd helps keep the cancer away.
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Karen, age 62, dx MDS RAEB-2 1/8/10: pancytopenia WBC 2.7k/Hgb 7.4/Hct 22.1/Plt 19k; complex cytogenetics -3,del(5)(q14q33),-6,+8,+mar,17% blasts. MUD BMT Johns Hopkins 11/30/10. Dx tongue cancer 8/31/12. ok now. blog mausmarrow.com
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#4
Sat Jan 28, 2012, 10:50 AM
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My one year biopsy showed 100% donor (aka my brother) cells. I am so thankful. The cyclosporin is keeping my gvh of skin and liver in good control, such that they are going to try weaning me down! I still have to get plugs put in my eyes and hopefully they will be better too. God is good.
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Lori, female age 53 dx MDS-RAEB-II 15% blasts 10-2010. Induc Chemo 10/14/10 for 7 days - results unacceptable so 5 additional days chemo. Complete Remission 12/10/10!! SCT 1-11-11 remission achieved!!! BMB 1-29-11 100% Donor! cgvh eyes,skin (Caringbridge.org/visit/loripatrick)
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#5
Sun Jan 29, 2012, 01:15 AM
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Woot!! That's fantastic news, Lori. Congratulations.
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Karen, age 62, dx MDS RAEB-2 1/8/10: pancytopenia WBC 2.7k/Hgb 7.4/Hct 22.1/Plt 19k; complex cytogenetics -3,del(5)(q14q33),-6,+8,+mar,17% blasts. MUD BMT Johns Hopkins 11/30/10. Dx tongue cancer 8/31/12. ok now. blog mausmarrow.com
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#6
Sun Mar 18, 2012, 10:59 PM
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Lori
Late reply, but keep moving forward
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Debbie, wife of Mike age 58, diagnosed RAEB 2 April 2010. Initial blast count somewhere between 10-15% then 20% after two treatments of Dacogen. Completed induction therapy 8/2/2010. BMB 8/31/10 - 4% blasts. SCT 10/1/2010. Relapsed in 10/2014, second transplant from same donor on 12/31/2014.
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