Home         Forums  

Go Back   Marrowforums > Treatments > Pediatrics
Register FAQ Search Today's Posts Mark Forums Read

Pediatrics Treatment for juvenile patients

Thread Tools Search this Thread
Old Sat Apr 19, 2014, 12:08 AM
Meahgee Meahgee is offline
Join Date: Apr 2014
Posts: 8
Very confused

I am a mother to an amazing little boy that is about 2.5. We have tried for over a year to find out what is wrong with him and causing his anemia. He just had a bone marrow aspiration and some, but not all the results are back yet. His marrow was hyper cellular with a high number of red blood cell precursors with adequate stores yet every single one of the 11 types of cells he had were exactly double the normal range. His retic count is very low at a 0.3 despite the fact that he is anemic. His ferritin was a 2. He had two iron infusions which only worked for a week and he now has nothing left again. How can one have the tools in their bone marrow, but be showing it's not working in retic count? Also what on Earth would cause exactly double of all cells in his marrow. They are waiting for mds to come back, but as you can imagine I am very very worried. I am having trouble finding a whole lot of anything on any of this. Thanks for your help.
Reply With Quote
Old Sat Apr 19, 2014, 02:35 PM
triumphe64 triumphe64 is offline
Join Date: Feb 2008
Location: Dallas, Texas
Posts: 441
Where do you live and where are your doctors?
Dallas, Texas - Age 77 - Pure Red Cell Aplasia began March 2005 - Tried IVIG - Then cyclosporine and prednisone. Then Danazol, was added. Then only Danazol . HG reached 16.3 March 2015. Taken off all meds. Facebook PRCA group https://www.facebook.com/groups/PureRedCellAplasia/
Reply With Quote

Thread Tools Search this Thread
Search this Thread:

Advanced Search

Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

vB code is On
Smilies are On
[IMG] code is On
HTML code is Off
Forum Jump

Similar Threads
Thread Thread Starter Forum Replies Last Post
confused about test results.... Kenzington Questions and Answers 4 Mon Jul 13, 2015 08:29 PM
confused and scared leesa Bone Marrow Failure 3 Thu May 16, 2013 08:27 PM
very new - very confused jennifercanada AA 2 Thu Jul 19, 2012 05:23 PM
New Patient confused and scared Anne Yeomans MDS 6 Sun Jan 1, 2012 08:11 AM
What are we waiting for? Totally Confused! Please help! Jennifer M AA 6 Wed Nov 9, 2011 02:09 PM

All times are GMT -4. The time now is 10:44 PM.

Powered by vBulletin® Version 3.6.7
Copyright ©2000 - 2020, Jelsoft Enterprises Ltd.
Forum sites may contain non-authoritative and unverified information.
Medical decisions should be made in consultation with qualified medical professionals.
Site contents exclusive of member posts Copyright 2006-2020 Marrowforums.org