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MDS Myelodysplastic syndromes

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  #1  
Old Tue Jul 1, 2014, 05:08 PM
Alvin Alvin is offline
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Join Date: Jan 2013
Location: Hope B.C. Canada
Posts: 25
Smile cannibidiol (CBD )

This will be hard to understand, I don't.
I have had MDS for two years. I have been getting two units of platelets every 9 or 10 days all this time. I also get two units of blood ( hemoglobin ) every 17 or 18 days.
Two months ago I started taking 3 drops of cannibidiol a day since then there was a period of 21 days that I didn't need platelets. I am now at 28 days and still do not need platelets. I don't notice much change in the hemo. count.
I take -
Lipitor
Exjade for iron overload.
Cannibidiol is non hallucinogenic hemp oil
I am 82 years old
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Old Wed Jul 2, 2014, 08:30 AM
Marlene Marlene is offline
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Join Date: Oct 2006
Location: Springfield, VA
Posts: 1,406
Thanks for posting this. There's not much information on the use of Cannibidiol for MDS. Glad your platelets are holding for you.
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Marlene, wife to John DX w/SAA April 2002, Stable partial remission; Treated with High Dose Cytoxan, Johns Hopkins, June 2002. Final phlebotomy 11/2016. As of July 2021 HGB 12.0, WBC 4.70/ANC 3.85, Plts 110K.
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