Home         Forums  

Go Back   Marrowforums > Bone Marrow Failure Diseases > MDS
Register FAQ Search Today's Posts Mark Forums Read

MDS Myelodysplastic syndromes

Reply
 
Thread Tools Search this Thread
  #1  
Old Tue Dec 25, 2012, 04:08 AM
SLB SLB is offline
Member
 
Join Date: Mar 2012
Location: Brisbane, Queensland, Australia
Posts: 130
Induction chemo - how long until your bone marrow regenerates?

Merry Christmas everyone! I am currently day 27 of my induction chemo and all hope of being out of hospital for Christmas is not even close! Currently, I have no neutrophils and still requiring blood & platelets on average every second day. I have had numerous and consistent fevers, had reactions to 4 different antibiotics but finally on two antibiotics and an iv anti fungal that seems to have bought down the fevers. A biopsy last Thursday showed my bone marrow is empty. So anyone out there that has gone through induction chemo, how long before your neutrophils started to show up? And then how long until they have reached 1.0? Feeling a tad disheartened! However at least doctors let me go for a few hours to at least see the kids open their presents. So wonderful to be out in fresh air again! Thanks for listening! Hope everyone can find abit of magic this Christmas! Sharnie.
__________________
Sharnie, 37yo, dx Mar 2012 RAEB II 13% blasts. 8 months of Vidaza. Transformed to AML in Nov 2012, induction chemo, no remission. 2nd lot of chemo, remission achieved. SCT with 8/10 match, Mar 2013.
Reply With Quote
  #2  
Old Wed Dec 26, 2012, 11:08 AM
rkp rkp is offline
Member
 
Join Date: Aug 2012
Location: Dallas,Texas
Posts: 25
Hi Sharnie,
I don't have any advice or answers to your questions.
I just read your post and wanted to send good wishes to you.
Praying and hoping that things get better for you and for all of us in this forum in the new year.

-rkp
__________________
RP, Daughter of SK age 66, diagnosed MDS July 2012
Reply With Quote
  #3  
Old Thu Dec 27, 2012, 11:05 AM
Dick S Dick S is offline
Member
 
Join Date: Jan 2008
Location: Florida
Posts: 189
When are they doing your SCT?
__________________
Dick S, diagnosed Feb. 2008 with MDS. Last BMB April 2016. New diagnosis is CMML stage 1.
Reply With Quote
  #4  
Old Sun Dec 30, 2012, 06:12 PM
SLB SLB is offline
Member
 
Join Date: Mar 2012
Location: Brisbane, Queensland, Australia
Posts: 130
Not sure when SCT will be scheduled. Had been told that if this round of induction chemo put me in remission, I would need two more rounds of consolidation chemo before SCT. They are currently working up the 8 out of 10 match because nothing better has come along. Dr now talking about skipping consolidation chemo & going to transplant when they can. Have been on gcsf injections for a few days & my neutrophils were 0.07 today. However need platelets again. Sharnie.
__________________
Sharnie, 37yo, dx Mar 2012 RAEB II 13% blasts. 8 months of Vidaza. Transformed to AML in Nov 2012, induction chemo, no remission. 2nd lot of chemo, remission achieved. SCT with 8/10 match, Mar 2013.
Reply With Quote
  #5  
Old Mon Dec 31, 2012, 01:15 PM
DanL DanL is offline
Member
 
Join Date: Dec 2010
Location: Denver, CO
Posts: 590
Sharnie,

Just wishing you some good thoughts as we head into the new year. Have a speedy recovery and get strong for the transplant!
__________________
MDS RCMD w/grade 2-3 fibrosis. Allo-MUD Feb 26, 2014. Relapsed August 2014. Free and clear of MDS since November 2014 after treatment with Vidaza and Rituxan. Experiencing autoimmune attack on CNS thought to be GVHD, some gut, skin and ocular cGVHD. Neuropathy over 80% of body.
Reply With Quote
  #6  
Old Tue Jan 1, 2013, 02:45 PM
Cam Cam is offline
Member
 
Join Date: Oct 2012
Location: Jacksonville, Florida
Posts: 88
Dear Sharnie,
I wish you the best of luck. I had my tansplant on 12/6/12. It took 12 days to get engraftment for me. I was out of the hospital on day 16 post transplant. Once my numbers increased they started to soar. My ANC is currently 3.4. That being said I was very lucky mine was an Auto transpant and had a 10 for 10 match with the same blood type. Keep the faith it will work.

Cam
__________________
Cam, BMT 12/6/12 for MDS, diagnosed August 2012 beat it in December 2012
Reply With Quote
  #7  
Old Tue Jan 1, 2013, 06:51 PM
SLB SLB is offline
Member
 
Join Date: Mar 2012
Location: Brisbane, Queensland, Australia
Posts: 130
Thanks guys..baby steps at the moment! Neutrophils are slowly raising and dr has been letting me out on day release. Just need to stay fever free & might get out of here. I can only wish my transplant goes as smoothly as yours Cam, good for you! Just a question of when & how many more rounds of chemo I will have to go through to get there. Happy new year everyone!
__________________
Sharnie, 37yo, dx Mar 2012 RAEB II 13% blasts. 8 months of Vidaza. Transformed to AML in Nov 2012, induction chemo, no remission. 2nd lot of chemo, remission achieved. SCT with 8/10 match, Mar 2013.
Reply With Quote
Reply


Thread Tools Search this Thread
Search this Thread:

Advanced Search

Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

vB code is On
Smilies are On
[IMG] code is On
HTML code is Off
Forum Jump

Similar Threads
Thread Thread Starter Forum Replies Last Post
Where Do I find normal values of bone marrow aspirate and immunophenotyping ? robsp Questions and Answers 2 Tue Nov 25, 2014 08:23 PM
Cryo-Preserved Bone Marrow Bank? Anthony Transplants 6 Sat Nov 15, 2014 12:02 PM
Confused with Bone marrow report teo MDS 168 Mon May 5, 2014 09:20 AM
Hypoplastic Bone Marrow No Problem? Shazza Tell Your Story 3 Thu Feb 20, 2014 04:20 AM


All times are GMT -4. The time now is 04:19 AM.


Powered by vBulletin® Version 3.6.7
Copyright ©2000 - 2024, Jelsoft Enterprises Ltd.
Forum sites may contain non-authoritative and unverified information.
Medical decisions should be made in consultation with qualified medical professionals.
Site contents exclusive of member posts Copyright © 2006-2020 Marrowforums.org