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#1
Sun Oct 27, 2013, 06:17 AM
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Does anybody else get a hot face?
I hope this doesn't sound weird, but do any of you fellow MDS sufferers find that you get really overheated in the face at times? Often my cheeks go bright red and hot, even on cold days, and it's really hard to cool them down quickly.
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Dx MDS RAEB 10% blasts + hypogammaglobulinemia, Sep 2011. Jan 2012 BMB - blasts down to 2% w/out treatment so BMT cancelled. Re-diagnosis RCMD. Watch and wait from Feb 2012. IVIg 5-weekly. New diagnosis Oct 2019 AML 23% blasts in marrow, 10% blasts in peripheral blood. 
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#2
Sun Oct 27, 2013, 05:52 PM
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Cheryl
Wow - I have not mentioned that to anyone - cept my husband - It is not menopause - been all threw that yrs ago. This started after my Vydaza and Decaron treatment. Long after treatment - It'll be interesting if anyone else gets this. My husband said it looks like a tomato. (?)
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Susan Patient, 58, MDS, UPDATED 9/13 Now have RAEB-2, Firbrosis 3+, blasts 18% peripheral, 10 - 14% blasts marrow, chromosomes now T 1:21, trisonomy 16 and 1.- Match found ---10/10 -couldn't believe when I heard - Tentative day is 1/09th!!!! Admit date changed to 11/12. WOW -
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#3
Sun Oct 27, 2013, 08:29 PM
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I thought menopause had raised its head again. Went through that 10 years ago but get very hot and sweaty. Mainly my face and head. My hair gets wet.
Then I blamed steroids even weeks after having had them  Every time I go into hospital I ask for a fan next to the bed.
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#4
Mon Oct 28, 2013, 05:36 AM
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Thanks for responding Chirley and Susan - not menopause for me either. Been there and done that ages ago, and never had hot flushes anyway. I guess it's comforting to know that it's possibly one of those weird MDS symptoms.
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Dx MDS RAEB 10% blasts + hypogammaglobulinemia, Sep 2011. Jan 2012 BMB - blasts down to 2% w/out treatment so BMT cancelled. Re-diagnosis RCMD. Watch and wait from Feb 2012. IVIg 5-weekly. New diagnosis Oct 2019 AML 23% blasts in marrow, 10% blasts in peripheral blood.
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#5
Mon Oct 28, 2013, 08:55 AM
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Cheryl
It is a weird thing thou - and it is just my face and head. Need to ask someone if I figure who to ask. Take care.
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MDS RAEB 2 w/excess blasts - 3+ Fibrosis - previous treatments ATG, Vidaza, Dacogen and Rituxan. Waiting to find my match - Susan
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#6
Mon Oct 28, 2013, 01:36 PM
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Decadron and other steroids can cause a flushed face and it will make it feel like your cheeks are on fire. It also can make your chest appear sunburned.
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Jill, 58 y/o female dx with MDS-U June 2008, IPSS:Int. 2. Allogeneic SCT May 25, 2010. Relapsed January 2011. Started Vidaza (azacitadine) Feb. 2011; Currently on cycle #58 , IV, 5-days every six weeks. WBC 5.3, Hgb 13.0, PLT 110 (2/16/18)
Last edited by Jill2008 : Mon Oct 28, 2013 at 01:53 PM.
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#7
Mon Oct 28, 2013, 02:34 PM
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Ok, ladies,
From what you are saying, maybe I'm not sliding farther down the menopausal trail. I get hot and sweaty after bathing even though I keep the water cool. No fever, but my family is getting tired of a cold house . . On steroids for skin GVH after MUD BMT
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Wife and mother of three young boys, diagnosed at age 39 with AA 2007; treated with ATG and cyclosporine; progressed to MDS end of 2012; MUD on June 26, 2013.
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#9
Wed Oct 30, 2013, 12:44 AM
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I asked the specialist down here in Tassie about the hot face yesterday and he told me that it can be a side effect of the gamma globulin I am having infused monthly. Going to take a break from it for a month or two starting in December and see how I go. My specialist in Sydney is a bit sceptical.
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Dx MDS RAEB 10% blasts + hypogammaglobulinemia, Sep 2011. Jan 2012 BMB - blasts down to 2% w/out treatment so BMT cancelled. Re-diagnosis RCMD. Watch and wait from Feb 2012. IVIg 5-weekly. New diagnosis Oct 2019 AML 23% blasts in marrow, 10% blasts in peripheral blood.
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