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#1
Mon Nov 4, 2013, 04:34 PM
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I'm still here
I haven't posted much, but I read everyone's posts almost daily. My 59 year old brother has MDS. He has been holding steady with 3 rounds of Dacogen, but now the dr. states he wants to wait 8 weeks and if there is no improvement, we will start the search for a BMT donor.
This news caught me by surprise to say the least. Does anyone have any experience with Dr. Aghi at UPMC (Pittsburgh)? I know several people are currently recuperating from the BMT and I am keeping you in my prayers. Sharon 
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#2
Wed Nov 6, 2013, 12:15 AM
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Thanks Sharon
 So is your brother doing well on dacogen? Do you know if your a match for him? Pls let us know how y'all are doing I'll be praying for y'all
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Heather, wife of Ronald 36; dx PNH 2012; Dx VSAA 2013; eculizumab(Solaris) hATG 2/20/13 cyclosporine 400 mg daily. 37 units RBC and 15 units of platelets. Post BMT -pentam,vorconizole,valtrex, valcyte, actigall, Pepcid , prograf, magnesium. 10/10 MUD 10/10/13 Now no PNH or AA. Mixed Chimerisim
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