Home         Forums  

Go Back   Marrowforums > Bone Marrow Failure Diseases > MDS
Register FAQ Search Today's Posts Mark Forums Read

MDS Myelodysplastic syndromes

Reply
 
Thread Tools Search this Thread
  #1  
Old Thu Oct 2, 2008, 10:23 PM
alicat4790 alicat4790 is offline
Member
 
Join Date: Aug 2008
Posts: 13
Who can I get to Stay with my sister near the Hospital?

My sister is 47 and will be getting a SCT. The hospital is two hours away from us. After she can leave the hospital on an inpatient basis she becomes an out patient. She needs to stay near the hospital to have her blood checked once a day for several weeks before she can come home. Are there organizations, volunteers or another group of people that can helps us to keep an eye on her? We live in the Northern Virginia area and the Hospital is two hours away at the Virginia Commonwealth University Medical Center in Richmond. If you can help me out with information please email me at: alicat0226@hotmail.com

Alison

Last edited by alicat4790 : Thu Oct 2, 2008 at 10:26 PM. Reason: typos
Reply With Quote
  #2  
Old Fri Oct 3, 2008, 03:10 PM
JulieC JulieC is offline
Member
 
Join Date: Sep 2008
Location: Virginia Beach, VA
Posts: 5
I'd be interested in that info as well. I was not told of any group in the area that does that. My husband most likely will be having his BMT at MCV as well. We leave 2 hours away as well and we will have to juggle care givers for him during that time.

Good luck.
__________________
Julie, husband dx 7/08, RCMD monosomy 7 secondary from NHL (dx 11/97), started Vidaza 8/08,
Reply With Quote
  #3  
Old Fri Oct 3, 2008, 07:42 PM
Marlene Marlene is offline
Member
 
Join Date: Oct 2006
Location: Springfield, VA
Posts: 1,412
The hospital/medical center should be able to assist you with this. They usually have social workers on staff. Many have friends and relatives rotate the caregiver position during that time frame. Can you line up a group of people to do this?
__________________
Marlene, wife to John DX w/SAA April 2002, Stable partial remission; Treated with High Dose Cytoxan, Johns Hopkins, June 2002. Final phlebotomy 11/2016. As of July 2021 HGB 12.0, WBC 4.70/ANC 3.85, Plts 110K.
Reply With Quote
  #4  
Old Sat Oct 4, 2008, 04:00 PM
JulieC JulieC is offline
Member
 
Join Date: Sep 2008
Location: Virginia Beach, VA
Posts: 5
I know our plan is to rotate caregivers during that time since I also have to juggle the care of our children as well. We have not been told that the Vidaza is going to work (only through 2 rounds) and are still waiting for a match since there are no siblings. Even if there was a group that helped to get my husband to his appointments, I would not feel right leaving him with strangers. We will make it happen as that is what we have to do. Best of luck to you.
__________________
Julie, husband dx 7/08, RCMD monosomy 7 secondary from NHL (dx 11/97), started Vidaza 8/08,
Reply With Quote
Reply


Thread Tools Search this Thread
Search this Thread:

Advanced Search

Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

vB code is On
Smilies are On
[IMG] code is On
HTML code is Off
Forum Jump

Similar Threads
Thread Thread Starter Forum Replies Last Post
SCT hospital survival tips bettyliz Transplants 5 Thu May 17, 2012 10:35 AM
Survival tips for your hospital stay bettyliz Spouses and Caregivers 0 Thu May 10, 2012 10:59 PM
After hospital treatment paulaespada AA 4 Fri Aug 15, 2008 06:13 PM


All times are GMT -4. The time now is 05:31 PM.


Powered by vBulletin® Version 3.6.7
Copyright ©2000 - 2024, Jelsoft Enterprises Ltd.
Forum sites may contain non-authoritative and unverified information.
Medical decisions should be made in consultation with qualified medical professionals.
Site contents exclusive of member posts Copyright © 2006-2020 Marrowforums.org