Home         Forums  

Go Back   Marrowforums > Bone Marrow Failure Diseases > AA
Register FAQ Search Today's Posts Mark Forums Read

AA Aplastic anemia

Reply
 
Thread Tools Search this Thread
  #1  
Old Mon Oct 23, 2017, 09:31 AM
cvignol cvignol is offline
Member
 
Join Date: Oct 2017
Posts: 1
Living with Possible MAA

My hematologist believes I may have moderate aplastic anemia. Unfortunately, my first bone marrow sample was non-diagnostic, and my hematologist is actively helping me seek a second opinion. I know all who live with this chronic illness have had different experiences, but I am trying to get a better understanding of how long I could be living in this watch and wait phase? It is so difficult for me to wrap my head around the fact that my marrow could be failing, but there is no treatment until I transition to that next level of severity.
__________________
Cristin, Mother of two little ones; presenting with pancytopenia, no diagnosis to date as second opinion is sought
Reply With Quote
  #2  
Old Mon Oct 23, 2017, 11:32 PM
Hopeful Hopeful is offline
Member
 
Join Date: Jan 2009
Location: California, USA
Posts: 652
Hi Christin,

The first thing to do is to get an accurate diagnosis from an expert in the field. AA is a disease of exclusion, so the doctors should run you through a bunch of different tests to rule out the more common causes of pancytopenia (vitamin/mineral deficiencies, viruses, certain medications, etc) Hopefully, it turns out to be one of those causes! Have you had a bunch of tests to look for other causes? Were you really ill in the past 4 months? How are your counts?
__________________
50 yo female, dx 9/08, AA/hypo-MDS, subclinical PNH, ATG/CsA 12/08, partial response. Tried slow cyclosporine taper over 4+ years. Platelets fell, so back on cyclosporine. Trisomy 6 clone in 5% of cells.
Reply With Quote
Reply


Thread Tools Search this Thread
Search this Thread:

Advanced Search

Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

vB code is On
Smilies are On
[IMG] code is On
HTML code is Off
Forum Jump

Similar Threads
Thread Thread Starter Forum Replies Last Post
Short Telomeres and MAA KatailS AA 1 Mon Mar 20, 2017 10:35 AM
cyclosporine as a first line treatment for MAA Emma J Drugs and Drug Treatments 1 Tue Apr 5, 2016 02:28 AM
Any body in west MI with child with MAA? ljensen3 Your Local Area 1 Sun May 1, 2011 04:06 PM
living with GvHd ? now on my skin mishka nichols Living with Illness 0 Tue Mar 2, 2010 11:51 AM
Living with Leukemia and MDS- Presentation Calgary, Alberta - April 24, 2009 Doug Mylie Canada 0 Thu Apr 16, 2009 03:01 PM


All times are GMT -4. The time now is 05:26 AM.


Powered by vBulletin® Version 3.6.7
Copyright ©2000 - 2017, Jelsoft Enterprises Ltd.
Forum sites may contain non-authoritative and unverified information.
Medical decisions should be made in consultation with qualified medical professionals.
Site contents exclusive of member posts Copyright 2006-2016 Marrowforums.org