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#1
Tue Nov 4, 2014, 01:59 AM
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Question about everyone that has gone through a BMT /SCT
Hi All ,
Just a question on what + day everyone was on when they started to see good Lab results come back and start to stay ? I feel like my daughter right now is still on a roller coaster ride .
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Mother of a daughter 27 with MDS . Cognitively delayed at birth 1987 , seizures 5 days old . pancytopenia 2006, AIHA 2013, EVANS 2013 , CVID 2013, ALPS 2014. MDS 2014 8/18/2014 WBC .3 , hemoglobin 7.3 , hematocrit 2, platelets 60 , neutrophil .21 Mag 1.6, Potassium 4.6 
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#2
Tue Nov 4, 2014, 02:16 AM
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Sue,
My wife got her first new white cells on Day +17. Her white count reached 4.0 on Day +29. Her platelets didn't reach 50 until Day +97. Unlike Amy, my wife couldn't eat anything for the first 3 weeks after her transplant.
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#3
Tue Nov 4, 2014, 10:17 AM
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I was measuring my progress by transfusions and ANC. I was transfusion free at about day + 17, and was over 1500 ANC by about day +35 or +40 if I recall correctly. I have remained transfusion independent, but my numbers (platelets and WBC in particular) still jump around quite a bit, partially due to the ongoing treatment with Vidaza.
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MDS RCMD w/grade 2-3 fibrosis. Allo-MUD Feb 26, 2014. Relapsed August 2014. Free and clear of MDS since November 2014 after treatment with Vidaza and Rituxan. Experiencing autoimmune attack on CNS thought to be GVHD, some gut, skin and ocular cGVHD. Neuropathy over 80% of body.
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#4
Tue Nov 4, 2014, 06:24 PM
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Naturally, everyone is different. On Day 13 my WBC jumped to 9.91, RBC to 3.53 and platelets to 65. On Day 24, WBC at 8.0, RBC at 3.93 and platelets at 196. By Day 75 the counts have stayed close to WBC at 6.3, RBC at 3.94 and platelets at 173. Counts have remained stable from about Day 24 until Day 75.
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age 70, dx RAEB-2 on 11-26-2013 w/11% blasts. 8 cycles Vidaza 3w/Revlimid. SCT 8/15/2014, relapsed@Day+210 (AML). Now(SCT-Day+1005). Prepping w/ 10 days Dacogen for DLI on 6/9/2017.
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